Dear GAAPP Community,
While COVID vaccination campaigns are gaining momentum in many countries around the world, we at GAAPP are preparing for our Scientific Meeting and Board elections.
In this newsletter, you’ll find, among other things, two great opportunities for patients to get involved in impactful projects. We also provide an update on our current focus in raising awareness.
We look forward to seeing many of you at the Scientific Meeting!
Best wishes,
The GAAPP Team
Spread the Word
SABA Break Over-Reliance
We are continuing our work for Asthma Awareness Month.
Please share the Health System Failure Video, which is part of our SABA BOR Campaign, on social media. You can find the video on our Social Media Channels or by clicking here.
3TR Patient Working Group
A European Project called 3TR is looking for patients with severe asthma to join the Patient Working Group to support researchers to develop a patient-centred definition of response to biological treatments for severe asthma.
The group is coordinated by European Lung Foundation and European Federation of Allergy and Airways Diseases Patients’ Associations. The 3TR project aims to improve the care of patients with severe asthma across Europe.
For more on the 3TR Project, click here. If you are interested in joining the Patient Working Group, click here for more information. Feel free to share the information with your associates!
PeARL Survey
“Pediatric Asthma in Real Life” (PeARL) has launched a survey to assess how pediatric asthma is currently monitored worldwide, and how optimal monitoring should be like. It will be used together with the published evidence, to inform recommendations on pediatric asthma monitoring.
Please encourage caregivers of children with asthma to participate in the survey. It only takes between 6-11 minutes.
To take the survey press here.
Upcoming Events
Global Skin Conference
On June 3rd, we will showcase our organization with a virtual booth at the GlobalSkin Conference – Thrive 2021.
If you want to register for the Conference, please click here.
GAAPP Scientific Meeting
Virtual Meeting on July 9th, 2021
7 am EDT = 1 pm CEST = 11 pm AUST
Duration: 4 hours
After that:
Annual General Meeting
and
Election of the Board
Upcoming Advocacy Efforts
Food Allergy
We are in the process of expanding our website with more detailed content about food allergies.
To visit our website, click here.
COPD
We are continuing our work on awareness, education and policy change.
Please let us know whether you have already had the chance to implement and use our COPD Patient charter locally.
Define Your Asthma
We are continuing our Define Your Asthma campaign with a special focus on caregivers.
To access the matierals of our Define Your Asthma campaign, like for example our Define Your Asthma Guide, click here.
Chronic Spontaneous Urticaria (CSU)
We are working on a Shared Decision Making Tool for CSU.
As soon as the Tool is ready, we will share it with our Members.
Reminders
Eosinophil-Driven Diseases (EDDs)
We have recently added content on EDDs to your website and would appreaciate your feedback.
Find our EDD pages by clicking here. If your organization is already involved in focusing on these conditions or plans to do so in the future, it please let us know.
Join our Facebook Group!
Our public Facebook channel is aimed at a broader population to create increased awareness of our common concerns. With the newly created, private Facebook group, we intent to create a space in which we not only provide you with information tailored to your specific needs, but where informal exchange is also facilitated.
Access to the Group is limited to GAAPP Members- Click here to join!