Newsletter: August 2022

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To our GAAPP Community:

For many, summer is coming to a close, as others are settled into winter. At GAAPP, we are preparing for a busy September and October with many global events and awareness days to promote.

GAAPP continues to grow and has reached 80 members worldwide! We are grateful for the opportunity to align our efforts to better serve patients, their families, and caregivers. We strive to provide the resources your organization needs to achieve your mission and continue to offer opportunities to receive communication grants, including the payment for translation services to provide our materials to your members. Contact GAAPP to learn more.

Did you know that GAAPP offers our member organizations project funding? Funding requests are reviewed on a quarterly basis. The next review will be in September. Please submit your requests by 15 September for review this quarter! View Funding Request Information.

In this Update

Opportunities
Get involved
GAAPP News
New Members
Latest Science

Upcoming Events

September 2: Global Respiratory Summit
September 14: World AD Day
Sept 21: Monthly International Urticaria Coffee Chats @ 15h CEST
September 25: World Lung Day
October 1: World Urticaria Day
October 1-2: Global Food Allergies Summit, Washington, DC USA

Member Opportunities

GAAPP is preparing 3 awareness campaigns to support your World Awareness Days efforts:

World Eczema Day (14 Sept) – GAAPP will provide the multimedia asset pack to promote our multi-awarded project “AD Caregivers Academy” with a communication grant for all the member organizations working with Eczema.

World Lung Day (25 Sept) – GAAPP, in alignment with FIRS, will provide assets to promote our 2022 WLD initiative “Asthma Care Access” with a communication grant.

World Urticaria Day (1 Oct) – We will provide the social media assets pack to promote U-Day in conjunction with our colleagues of GA²LEN.

Assets will be shared shortly. Save the Dates!

Get involved

23092 GSK EE Asthma Patient Diaries_Thumbnail.png

My Asthma Diary, a joint collaborative project between GAAPP and GSK, was created to present Health Care Professionals and medical teams the patient perspectives on living with severe asthma, and to enhance understanding amongst HCPs of its impact over time thanks to the valuable insights of Irantzu Muerza (Spain), Brenda Young (USA), and Christian Ukegbu (Nigeria).

Share the videos with your community and help us spread the voice of people living with severe asthma globally.

The SPEAK UP FOR COPD campaign has one critical goal: to increase the awareness and understanding of COPD among policymakers and healthcare systems. Over 1,200 people have lent their voices to SPEAK UP FOR COPD. Will you lend yours?

Interview for World Urticaria Day

GA²LEN is looking for a patient to participate in a short interview that will be recorded remotely via Zoom about their experiences with Urticaria. If you are interested in being interviewed contact Agniezska.

Health Works – Open Call for Collaboration Projects

Health Works is a patient-centric innovation hub founded and owned by AstraZeneca. Health Works looks for solutions to healthcare challenges and opportunities where AstraZeneca can add value through its knowledge, network, and experience. The outcome of these efforts might be new digital tools or smart devices, improved healthcare interactions, and ways of working, or increased knowledge or policy changes. Applications for collaboration will be accepted in September. Visit https://www.healthworksaz.com/apply-to-collab/ for more information.

GAAPP News

The Global Respiratory Summit will be held in Barcelona and online on 2 September. In-person registration is now closed, but online registration is still available. Please join us online!

View program

Virtual Registration

GAAPP 2022 Annual General Meeting

On June 30 GAAPP held its first in person Annual General Meeting since 2020 in Prague, Czech Republic! We welcomed 10 patient organization in person, with an additional 42 participating virtually. Download a copy of the minutes from the June 30 Annual General Meeting.

Tobacco Survey Results

GAAPP partnered with the COPD Foundation and Lung Foundation Australia to survey individuals with chronic lung diseases to assess the response of tobacco corporations’ ownership of lung disease treatments.

We found that 70% of respondents, from regions around the world, were unhappy with this development. In addition, free text feedback received was overwhelmingly negative in nature at 78%. Survey results, as well as anonymous feedback provided, have been published in the official journal of the British Thoracic Society, Thorax, titled Tobacco industry ownership of pharmaceutical companies: an international survey of people with respiratory disease

GAAPP Facebook Community

GAAPP has a private Facebook group for our member organisations. Join the group today to connect to other organizations to increase collaboration! Scan the QR code to view the group and request to join, or click here!

New Members

GAAPP continues to grow and broaden its reach around the world! We are pleased to welcome the following new members approved at our July Board of Directors meeting. Click on the logo to learn more about each organization and its mission.