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Your monthly update from GAAPP
Dear GAAPP Community Members,
With over 30 participants from all over the world, our Scientific Meeting and Annual General Meeting were a great success this year. We were delighted to see many of our community again – in person and virtually!
We would like to take this opportunity to invite you once again to participate in our Global Respiratory Summit on September 2nd. The hybrid event will be held in Barcelona, Spain. Participation is possible both in-person and via an online live stream. For those who wish to attend in person, we will provide financial support.
We currently offer the following paid advocacy and awareness opportunities:
Patients with Mild Asthma that want to share their experience on their medical visits and problems with treatment adherence.
Asian patients with COPD (China, Japan, India, Pakistan, Vietnam)
African patients with COPD
If you want to enroll any of your patients or yourself, please contact vgascon@gaapp.org.
EFA will conduct the Young Leadership Training through the European Allergy and Asthma Youth Parliament.
The training will take place in Brussels, Belgium from 29th-30th September. During these two days, participants will take part in workshops and tours to see up close how the EU operates. They will also gain skills and understanding of how, as young patient advocates, they can have a voice in decision-making to improve the Quality of Life for young allergy and asthma patients across Europe. More information in this link
Get involved!
The Global Research on the Impact of Dermatological Diseases (GRIDD) project is now in the final stages of testing the pilot version of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure.
Our cooperating partner GlobalSkin is asking you to invite adult patients in your community to participate in the current study by completing two surveys, approximately two weeks apart. The surveys are available online and in English only. They take approximately 10 to 15 minutes and you will be given up to one month to complete each of them.
On June 30th, we conducted our Annual Scientific Meeting and Annual General Meeting in Prague and via an online live stream. Over 30 patient advocates from around the world gathered for our hybrid meetings. We sincerely thank all those who attended for your time and commitment. Our gratitude also goes to our sponsors, AstraZeneca, Roche, & Sanofi Regeneron.
Click on the button below to access the summary and recording of our 2022 Scientific Meeting.
GAAPP President Tonya Winders held the closing presentation for the International Respiratory Coalition in Paris on 28-29 June 2022. She highlighted the need to elevate chronic respiratory diseases in the policy agenda by creating national action plans. The IRC will focus on Europe in 2022-2023 & will then expand to a more global focus. The IRC is a coalition led by ERS, GAAPP, & five industry partners. Download the statement document
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We would like to welcome our two newest member organizations to our community!
Fundación de Hipertensión pulmonar de Panamá
The non-profit Panama Foundation of Pulmonary Hypertension was founded in 2016 to support respiratory patients from the social and policymaking perspective, thus improving their life expectancy.
ALERMA- Asociación de Alérgicos y Enfermos Respiratorios de Málaga
The provincial non-profit organization from Málaga, Spain, focuses on training allergic and respiratory patients with professionals: Pulmonologists, Allergists, Psychologists, Physiotherapists, etc. Besides participating in all relevant World Awareness Days, ALERMA offers workshops on inhaler management, disease management, etc., for their patient community.
The 2022 Global Respiratory Summit will be held on September 2nd in Barcelona, Spain, before the ERS Congress. We would be pleased to welcome you to Barcelona for this event. Please confirm your attendance by clicking the link in the newsletter.
If you want to be part of our database of paid translators, please email the name of your organization and the languages you can translate into to vgascon@gaapp.org. We will then contact you as soon as new translation opportunities arise.
The volunteers share their own experiences either as patients or caregivers. This helps the diseases and the everyday challenges they cause to become more widely known. Another goal of the initiative is to offer peer support for those dealing with the same condition through these stories on social media.
Members of the month
ALLERGIA-, IHO- JA ASTMALIITO
Focusing on allergies, asthma and skin diseases, the Finnish Allergy, Skin and Asthma Federation offers counseling, professional training and peer support, as well as conducting research and releasing publications in the field.
Polska Federacja Stowarzyszeń Chorych na Astmę, Alergię i POchP
Aiming to represent the interests of people with asthma, allergies, and COPD, the organization actively engages with World Asthma Day, World COPD Day, and World Allergy Week.
The Czech Initiative for Asthma seeks to increase awareness of bronchial asthma. Based in Prague, the organization aims to improve asthma diagnosis at a younger age and effectively and safely treat it in order to prevent irreversible changes. The Czech Initiative for Asthma also focuses on the economic impact of asthma, trying to make medical support accessible for all.
Founded in 1995, the Portuguese Asthma Patients Association seeks to raise awareness of asthma as a global public health problem. The association participates in developing programs, controlling harmful substances and improving communication between patients and healthcare professionals.
