The Mast Cell Disease Society (United States of America)

The Mast Cell Disease Society (TMS) is a nonprofit organization dedicated to improving the lives of individuals affected by mast cell diseases—rare and often debilitating conditions such as systemic mastocytosis and mast cell activation syndrome (MCAS). These disorders frequently go undiagnosed due to their complex symptoms. TMS bridges gaps between patients, caregivers, and healthcare professionals by providing education, advocacy, support, and research opportunities. With a community of over 20,000, TMS engages through social media, webinars, newsletters, events, and fundraising efforts to raise awareness and foster connection. The organization also serves as a trusted resource for clinicians, offering materials to support accurate diagnosis and care. TMS funds research, supports clinical studies, and creates patient-centered patient-centered tools—advancing care and quality of life while working toward a cure.