SECURE-AD Project & Patients Registries

The SECURE-AD Patients Registry is to help understand how COVID-19 specifically affects people with atopic dermatitis. This is a patient-reported registry and is complementary to the SECURE-AD registry reported by health care providers.

Gathering real world data will provide the now lacking information on how COVID-19 affects people with AD, and how AD influence COVID-19.

Only together and doing this worldwide, we can achieve that goal. 

It is expected that COVID-19 will not just go away, so for the well-being of people with AD in the future this is essential.

Secure-Derm  – a close international collaboration between clinicians, scientists and patients to collect anonymized data concerning patient outcomes as a result of the COVID-19 pandemic, together with an international scientific advisory committee has developed the Secure-AD (Atopic Dermatitis Covid-19) patient registry.

 

GAAPP is supporting Global Patient Registries. The more people that register the better we can understand the diseases. Please share and participate in the registries below:

 

COVID-19 and atopic dermatitis

The coronavirus disease 2019 (COVID-19) has become a pandemic and a global public health emergency. At the moment, we do not yet know why some people get sicker than others. We also do not know if people with atopic dermatitis (AD) are affected differently, due to their disease or because of the medication they are taking.

 

Atopic dermatitis and COVID-19 registries

AD, also known as eczema, is a common chronic inflammatory skin disease. In people with moderate-to-severe AD, medications can be used that influence the immune system; either in the form of tablets or injections (systemic medication). The impact of these systemic medications on COVID-19 outcomes is currently unknown. That is why we have set up two international COVID-registries for AD: one that is completed by health care providers and one that is completed by patients themselves. It is called: SECURE-AD.

 

How do these registries work?

When you have AD and you have been diagnosed with COVID-19 or when COVID-19 is strongly suspected, even if this was a while back, we encourage you to complete the patient survey of the SECURE-AD Patients Registry, so that we can understand your personal experience of the infection. Please also let your doctor know about your infection episode and ask them to enter your case in the SECURE-AD Physician Registry. Both online registries complement each other, are safe and secure, collect anonymised data and have received the relevant ethical/Institutional Review Board approvals.

 

Importance

By collecting worldwide data on COVID-19 and AD, SECURE-AD will make it possible to assess the impact of COVID-19 on AD patients and what influence AD treatments have on the course of the infection. This will help to guide doctors in their care of AD patients who are infected with COVID-19.
In addition, SECURE-AD works closely together with similar COVID-19 registries, such as for psoriasis, alopecia areata, rheumatic diseases and inflammatory bowel diseases, so that we can compare our results and experiences. This makes the impact of the SECURE-AD project even greater. In a joint effort we can address the uncertainties we currently face.

 

More information

Please visit our website or check the frequently asked questions. If you want to report your case, you can go directly to the patient survey page. Your support is very much appreciated!

The SECURE-AD Steering Group & International Scientific Advisory Committee

Contact: secureADpatients@gmail.com