Amathuba okuFumana uPhando

Sizama ukuxhobisa uphando olugxile kwisigulane kunye nemfundo yoluntu efanelekileyo ngokwenkcubeko ngokufuna abathathi-nxaxheba kwiimvavanyo zeklinikhi, uphando, amaqela ekugxilwe kuwo, kunye nodliwano-ndlebe ngokubambisana nemibutho yethu engamalungu kunye nabaninzi abasebenzisana nabo.

Senza konke okusemandleni ethu ukuxhobisa uluntu lwethu lwehlabathi sijolise ekuphakamiseni ilizwi lesigulana elivela kwimimandla eyahlukeneyo yehlabathi, kuquka imimandla engathathi nxaxheba kuphando lwezonyango.

UAlbert Einstein wathi, “Sukumamela umntu oneempendulo; mamela umntu onemibuzo. ”…

Izifundo zophando lwezonyango ezibandakanya amawakawaka amavolontiya zikhokelele kwiindlela ezintsha zokuthintela nokubonelela ngenkathalo, uphuhliso lwamayeza amatsha, kunye nezixhobo zonyango eziphuculweyo.

The i-infographic eqhotyoshelweyo ibonisa umzekelo omnye wempembelelo yophando olujongiweyo (olungenatshintsho kunyango) olukhokelwa yi-GSK kunye namaqabane ayo aphesheya kwisifo semiphunga esingapheliyo (i-COPD).

I-GAAPP igaye abathathi-nxaxheba ukuba bancede imibuzo yakho ifumane iimpendulo kwaye yazise ukhathalelo olungcono, unyango oluphuculweyo, unyango olutsha, kunye nezixhobo zonyango ezingcono.

Joyina imodareyitha uKristen Willard kule webinar yeyure enye edlalwa yi-GAAPP ngoNovemba ngenjongo yokunceda abantu abaphila neemeko ezingapheliyo bazive bezithembile kwaye benolwazi malunga nokubandakanyeka kuphando lwezempilo. Kulo msitho, uya kufunda ukuba amava akho kunye nezimvo zinokwenza njani umahluko wokwenyani ekubumbeni izifundo, ekuphuculeni ukhathalelo, nasekuqhubeni izinto ezintsha. Siza kuphonononga iindlela ezahlukeneyo izigulana ezinokuthatha inxaxheba kuphando - kubandakanywa ulingo lwezonyango, uphando, okanye amaqela ekugxilwe kuwo - kwaye ukuba yinxalenye yophando kubandakanya ntoni. Uya kuva kwigqwetha lesigulana uGqr. Tina Mesaric, umphandi uGqr. Ruth Tal-Singer, kunye nengcali yokhathalelo lwempilo uGqr. Bartolome Celli, abathe babelane ngeembono zabo ekusebenzeni kunye ukwenza uphando lube nentsingiselo ngakumbi kwaye lugxile kwisigulane.

Jonga i-webinar

Uvavanyo loluntu

Amava kunye nokuqonda okuqokelelwe kuluntu kungasetyenziselwa ukunceda abaphandi bafunde ngeemfuno ezingafezekanga zezigulane kunye nokukhokela ukuphuhliswa kwezixhobo ezintsha, izixhobo zemfundo kunye nonyango. Uphando olungachazwanga magama lunika ulwazi olubalulekileyo malunga nemiba ebalulekileyo kuluntu efuna ukusonjululwa. Ukuba unayo nayiphi na imibuzo, nceda imeyile 

I-GAAPP ibisebenzisana neCopenhagen Institute for Futures Studies kwinkqubo entsha yomsebenzi malunga. Ikamva lothintelo kunye nolawulo lweCOPD kuzo zombini inqanaba lenkqubo kunye nenqanaba lomgaqo-nkqubo. Kunye nokuveliswa kwesalathiso esiza kuthelekisa amazwe. Bakwaqhuba nesifundo saseDelphi. Thatha inxaxheba kuphando: https://forms.office.com/Pages/ResponsePage.aspx?id=jjvZyuMbfkev96kAQ_f4JF5B1eH4Ax1DqWqw5zY0vytUMFE0QzhYR0w0UE5WNzk0TlQxRkc3UTJVMC4u

Ngaba ukhe wayisebenzisa iBronchiectasis Toolbox? Singathanda ukuva kuwe.

Ngaba une-bronchiectasis, okanye ukhathalele umntu onaye? Uyamenywa ukuba uthathe inxaxheba kuphando olufutshane olukwi-intanethi malunga namava akho ngeBronchiectasis Toolbox.

Kutheni uthatha inxaxheba?
Ingxelo yakho iya kunceda ukuphucula izixhobo ezikwi-intanethi kwaye ixhase abantu abaphila ne-bronchiectasis.

Ngubani onokuthatha inxaxheba?

  • Abantu abadala abaphila ne-bronchiectasis
  • Abanakekeli babantwana okanye abantu abadala abane-bronchiectasis
  • Umntu ogqibezela uphando uneminyaka eli-18 nangaphezulu
  • Ndisebenzise iBronchiectasis Toolbox kwiminyaka eli-10 edlulileyo

Yintoni ebandakanyekileyo?
🕒 Kuthatha malunga nemizuzu eli-15
🔒 Ongaziwayo
✔️ Ngokuzithandela

Thatha uphando
📱 Skena ikhowudi ye-QR okanye 🔗 Ndwendwela uphando

Ikhowudi ye-QR eya kwi-Bronchiectasis Toolbox Survey

Ngaba uye wafunyaniswa ukuba uneCOPD? Uphando olutsha luyafumaneka malunga nokusetyenziswa kwe-corticosteroids, efana ne-prednisone kunye ne-COPD. Cofa apha ukuze wabelane ngamava akho ngeepilisi ze-corticosteroid, kunye neengcinga zakho malunga nendlela esinokuyinciphisa ngayo imingcipheko yokusetyenziswa ngaphantsi kunye nokugqithisa kunye neziphumo ebezingalindelekanga.

Umbutho wethu wezonyango ohlangeneyo EUFOREA iqhuba uphando olufutshane, olungachazwanga magama ukuze iqondwe ngcono eyona nto ibalulekileyo kuwe kunyango lwakho.

Ukuba uhlala ne imeko engapheliyoezichaphazela impumlo yakho, sinuses, okanye imiphunga, umenyiwe ukuba uthathe inxaxheba. Uphando luthatha malunga Imizuzu ye-5-10 kwaye iya kusinceda siphucule ekuchazeni ukulawula, uxolelo kunye nokunyanga ngokwembono yethu yomonde. 

Thatha uphando: https://form.jotform.com/252883100664355 Okanye uskena ikhowudi yeQR:

Iibhodi zeeNgcebiso, amaQela ekuGxininiswa nawo kunye noLwazi lwezigulana

Izigulane kunye nabanakekeli banamava akhethekileyo abanye abanokufunda kuwo, amava angaziwa ngabaphandi. Iibhodi ze-Ad zenza injongo ebalulekileyo ekuboneleleni ngelizwi lesigulane, imbono enolwazi kwizihloko ezinxulumene nazo ezifundwayo. 

Ndikhangela abantu abavela e-US okanye eKhanada abaphila ne-rhinosinusitis engapheliyo kunye nee-polyps zempumlo emakhaleni omabini ngokuthatha inxaxheba kwiphaneli yophando.

Ukuba unomdla, nceda unxibelelane  ngeenkcukacha.

Ukukhangela izigulane ezineNtsholongwane yokuphefumla (RSV) evela kwihlabathi lonke, ngaphandle kwe-UK, i-Spain kunye ne-China.

Iinqobo zokubandakanywa:

  • Iminyaka ye-60 okanye ngaphezulu
  • Oogqirha be-RSV bayaqaphela

Ukufumana ulwazi oluthe vetshe, sithumele i-imeyile .

Kufunwa abaguli aba-7 kwihlabathi jikelele

Iinqobo zokubandakanywa:

  • Umntu omdala oneminyaka eyi-18 nangaphezulu
  • Ukuxilongwa kwe-non-cystic fibrosis bronchiectasis
  • Uyakwazi ukuthetha isiNgesi, isiFrentshi, okanye iSpanish
  • Yonke imimandla

Ukufumana ulwazi oluthe vetshe, sithumele i-imeyile .

Ukuqeshwa kovavanyo lwezonyango

Phambi kokuba unyango olutsha luvunywe ukuba lusetyenziswe, kufuneka kwenziwe inkqubo ecokisekileyo yophando. Izifundo zeklinikhi ziyinyathelo elibalulekileyo kuloo nkqubo. Unyango lunokuba ngamachiza amatsha, iinkqubo zotyando okanye izixhobo, kunye neendlela ezintsha zokusebenzisa unyango olusele lukhona. 

Uphononongo lweRedwood okwangoku lubhalisa abantu abadala abaneminyaka eyi-18 ukuya kwengama-75 ubudala abaneSifo sesibindi se-Alpha-1. Injongo yophononongo kukuvavanya ukuba likhuselekile kwaye lisebenza kangakanani na ichiza lophononongo lophando xa lithelekiswa ne-placebo (omabini amaqela aya kufumana iinaliti, kodwa i-placebo ayinamayeza asebenzayo) kunyango lwesifo sesibindi. 

Ukuba wena okanye naliphi na ilungu losapho lwakho ninokuxilongwa okuqinisekisiweyo okanye okukrokrelekayo kwe-Alpha-1 yeSifo sesibindi, unokufaneleka. Indawo yophando ethatha inxaxheba inokuqinisekisa ukufunyaniswa kwe-Alpha-1 yeSifo sesibindi kunye nezinye iinqobo zophononongo zokumisela ukufaneleka. Ukuze ufunde ngakumbi kwaye ubone ukuba ufanelekile na, nceda undwendwele TheRedwoodResearchStudy.com.

Uphononongo lwe-ARIA luvavanya okufanayo kanye yonke imihla, i-inhaler enye, unyango oluphindwe kathathu oluqulethe amayeza amathathu: i-fluticasone furoate, i-vilanterol kunye ne-umeclidinium (FF/VI/UMEC), kunyango lwe-asthma kulutsha. Bonke abathathi-nxaxheba baya kufumana unyango lwe-asthma kunye nokukhululeka ngokukhawuleza unyango "lokuhlangula" ukuze lusetyenziswe njengoko lufunekayo kwiimpawu ze-asthma kulo lonke uphando. Iikhrayitheriya zokufunda:

  • Uzinzile kunyango lwesondlo kangangeeveki ezi-6 ubuncinane
  • Uneminyaka eyi-12-17 ubudala

  • Yiba nesifuba esingalawulekiyo


Ukuze ufunde ngakumbi, ndwendwela iwebhusayithi yezifundo zeklinikhi ku iteenasthmastudy.com.

Ukuba isifo sombefu siphazamisa ubomi bakho bemihla ngemihla, uphononongo lophando lwezonyango lwe-J2S-MC-GZMR lunokuba lolwakho. Uphononongo lophando lweklinikhi lwe-J2S-MC-GZMR luvavanya ukuba iyeza elitsha lophando linokusebenza kulawulo lweempawu zombefu. Eli yeza lophando liya kuvavanywa ukusebenza kwalo ukuze kuphuculwe impilo umzimba kunye nokunciphisa ukudumba, leyo kunye inokubonelela isiqabu iimpawu sombefu. Inkqubo yemetabolism ilawula indlela umzimba okuguqula ngayo ukutya ube ngamandla kwaye ikwayanyaniswa neempawu zombefu kunye nokudumba.

Iikhrayitheriya zokufunda:

  • Uneminyaka eyi-18-75 ubudala
  • Kwafunyaniswa ukuba unesifo sombefu
  • sebenzisa i-inhaler rhoqo

Usenokukwazi ukuqhubeka usebenzisa amayeza akho e-asthma ngelixa uthatha inxaxheba kolu phando lweklinikhi. Amanye amatyelelo ophando angagqitywa ukude, nokuba ngefowuni okanye nge-telemedicine. Ukuze ubone ukuba uyafaneleka na kwaye ukuba kukho indawo yophando kufutshane nawe, jonga olu luhlu lulandelayo: 

Uphila ne-hives ezirhawuzelelayo nezibuhlungu? Yiba yinxalenye yophando oluqhubela phambili lwe-Chronic Hives

The Uphononongo lwe-EMBARQ lwe-Cold-induced Urticaria (ColdU) kunye ne-Symptomatic Dermographism (SD) ngoku kubhalisa abantu abazithandelayo. Olu phando luvavanya ukhuseleko kunye nokusebenza kakuhle kwamayeza ophando, anikwa ngenaliti, kubantu abaphila nezi meko.

Abantu ngabanye banokufanelekela uphononongo ukuba:

  • Ngaba uneminyaka eyi-18 ubudala okanye ngaphezulu
  • Baye bafunyaniswa ukuba baneColdU okanye i-SD ubuncinane iinyanga ezi-3 ngaphambi kotyelelo lwabo lokuqala lokuhlolwa
  • Qhubeka uziva urhawuzelelwa okanye ukurhawuzelelwa nangona usebenzisa i-antihistamine imihla ngemihla efana ne-cetirizine (Zyrtec®), i-fexofenadine (Allegra®), okanye i-loratadine (Claritin®)
  • Ndithathe idosi yemihla ngemihla ye-antihistamine ubuncinane iiveki ezi-4 ngaphambi kokuba ndijoyine olu phando*
  • Bazimisele ukugcina idayari elula yemihla ngemihla kwaye balandele iinkqubo zokufunda
  • Bakulungele ukwenza uvavanyo eluswini olunokubangela amaqhuqhuva okanye ukudumba okwethutyana
  • Hlangana neekhrayitheriya ezongezelelweyo zophando, eziza kuhlolwa ngugqirha wophando ngexesha lokuhlolwa

*Nceda uqinisekise ukuba unoluhlu oluhlaziyiweyo lwamayeza onke owasebenzisayo okwangoku okanye owayeke ukuwasebenzisa kutshanje ukuze uxoxe ngakumbi nogqirha wophando.

Buza ugqirha wakho ukuba Uphononongo lwe-EMBARQ-COLDU kunye ne-SD isenokuba ifanelekile kuwe. Ungafumana ulwazi oluthe kratya uze ubone ukuba uyafaneleka na ngokutyelela i iwebhusayithi yokufunda: 

Ngaba uphila nokukhohlela okungapheliyo? Uvavanyo lweLAKE lusenokuba lufanelekile kuwe.

Uvavanyo lweLAKE lubhalisa izigulane kwi Khanada kwaye i iunited Kingdom ukuthatha inxaxheba kuvavanyo lweklinikhi oluthatha malunga neeveki ezili-13 oluquka utyelelo lomntu ngamnye izihlandlo ezisi-7. Olu vavanyo lufuna ukuqonda iidosi ezahlukeneyo zonyango oluphandwayo kunye nemiphumo yalo enokubakho ekukhwehleleni.

Ngexesha lovavanyo, abathathi-nxaxheba baza kunikwa ngokungacwangciswanga ukuba bathathe unyango lophando okanye i-placebo, ngohlobo lwepilisi ethathwa ngomlomo, kabini ngemini kangangeeveki ezi-6. Abathathu kwabane abathathi-nxaxheba baza kufumana unyango lophando.

Ungafaneleka ukungena kwilingo leLAKE ukuba:

  • Ngaba unama-18 nangaphezulu
  • Ndibe nokukhohlela okungapheliyo ubuncinane unyaka omnye

Kukho ezinye iimfuno zokungena kwilingo leLAKE. Thetha nogqirha wakho ukuze ubone ukuba ukungena kwilingo kulungile na kuwe.

Akukho ndleko zokujoyina uvavanyo. Uza kuhlawulwa ngeendleko ezinxulumene novavanyo.
Ukuze ufunde okungakumbi kwaye ufumane indawo yakho yovavanyo ekufutshane, ndwendwela:

Ukuba unomdla wokuthatha inxaxheba nakweliphi na lala mathuba, nceda uqhagamshelane nathi ku kwaye ubhekisele kwigama lethuba.

Amathuba eGalelo lokuQeshwa kweMfundo

Amathuba amavolontiya anxulumene nemfundo efana neendima zokuthetha kunye nokurekhodwa kwevidiyo ukunceda ukwabelana nohambo lwakho lwesigulana. Ukuba banomdla ekufakeni igalelo kodwa abaliboni ithuba elidwelisiweyo, banokuqhagamshelana    

Xelela ibali lakho

Ngaba ungumntu oneCOPD, i-atopic dermatitis, okanye ukhohlokhohlo olungapheliyo kwaye ufuna ukuxelela uhambo lwakho lwezempilo okanye ibali lonyango? I-GAAPP iqokelela ubungqina obufutshane bevidiyo kwaye inomdla wokuva kuwe! Ukurekhoda ibali lakho kuthatha malunga nemizuzu engama-30 kwaye kunokwenziwa usebenzisa i-smartphone yakho. Unomdla wokufunda ngakumbi? Sithumelele i-imeyile .

Ilizwi Elingaqhelekanga Lesigulane – Zibandakanye Kuphando!

Yabelana ngamava akho. Yenza impembelelo.

I-GAAPP isebenzisana ne Ilizwi Elingaqhelekanga Lesigulane ukunceda izigulane kunye nabanakekeli beentsapho ukuba bafikelele kumathuba ophando. Ngokubhalisa, ungafumana izaziso malunga nophando olufanelekileyo oluhlawulelwayo, udliwanondlebe kunye neendawo zophando ezikwi-intanethi.

💬 Yabelana ngamava akho. Uhlawulwa i-$120/ngeyure.

Bhalisa simahla ukuze ufumane izaziso xa ithuba lophando likulungele. Akukho ndleko zokujoyina, kwaye ungakhetha ukuba uza kuthatha inxaxheba okanye awuthathi nxaxheba kwithuba ngalinye.

Amathuba afumaneka ngoku kumazwe aliqela, kuquka iSpain, i-United States, iKhanada, i-United Kingdom, iFrance, iJamani, i-Itali, i-Australia kunye neNew Zealand.

Ingaba ungumguli okanye ungumnakekeli wosapho? Bhalisa namhlanje kwaye wenze ilizwi lakho livakale kuphando.

Joyina iRare Patient Voice

Igqityelwe ukuhlelwa nge-8/26/2026