iSEEK – Beijing Aixike Pulmonary Hypertension Rare Disease Care Center (China)  

Beijing Aixike Pulmonary Hypertension Rare Disease Care Center is the first public welfare organization in China to provide support and assistance to patients with pulmonary hypertension. In 2009, it was initiated and established by patients with pulmonary hypertension, various parties and caring people across the country. In 2013, it officially opened in Beijing. Aixike has accelerated the introduction, research and development and inclusion of drugs in medical insurance by carrying out a series of educational and publicity activities such as Blue Lip Classroom, Love Lung Rebirth Program, Blue Lip Photography Exhibition, and World Pulmonary Artery Day. The process has improved the medical community and the public’s understanding of pulmonary hypertension and rare diseases, and has gradually improved the quality of life of Chinese patients. With the help of caring people, they will continue to safeguard the equal rights and interests of patients in medical care, education, employment, travel, etc., and promote joint decision-making between doctors and patients and the improvement of related systems. Currently, more than 2,000 patients and 100 medical professionals have joined.

• • Wechat: iseekph