Organización de pacientes respiratorios, nuestro principal objetivo es poder promover el derecho de toda persona a una salud pública, digna y de calidad. Tanto en el ámbito médico, farmacéutico y social en donde todo paciente respiratorio pueda tener acceso a un correcto programa de salud, el cual le permita dentro de sus capacidades poder reinsertase a la sociedad de mejor forma y con mayores herramientas. Dentro de los servicios que como fundación hemos entregado a nuestra comunidad de pacientes es la de educar, visibilizar, orientar y poder compartir experiencias entre los propios pacientes en la actualidad contamos con una comunidad online a través de WhatsApp compuesta por 130 pacientes aproximadamente, red de Instagram con mas de 650 seguidores y siempre pensando en el crecimiento de esta fundación.

It is the Mission of Right2Breathe® to provide Education, Awareness, Free Screening, and Resources for people who are currently diagnosed or at higher risk of being diagnosed with respiratory disease. We believe that Everybody has a Right2Breathe.

Right2Breathe was founded on the powerful idea that people can overcome difficult obstacles when they allow their passions in life to inspire them. The old adage, “When you do what you love, you don’t work a day in your life” applies to much more than just one’s career choices.

We believe that the world is a better place when people use their gifts and talents to follow their dreams. Our mission is to inspire, educate, and empower people living with lung disease to rekindle the fire for their passions while providing the information necessary for them to take action. This will help them renew their commitment to their own wellness while inspiring other members of the respiratory patient community. In addition to the patient community, we provide education for caregivers who support them and the clinicians who treat people living with respiratory disease.

We achieve our mission through Lung Health initiatives, multiple outreach and educational programs.

Company Info: The Non-communicable Diseases Alliance Kenya (NCDAK) is a Non-Governmental Organisation, registered in 2012 under section 10 of the NGOs Coordination Act 1990, registration number OP.218/051/12-0125/8213. With a vision of “NCD-free Kenya”, NCDAK seeks “to be the lead membership organisation in Kenya on all matters pertaining to NCDs“, in order to contribute to the reduction of the preventable burden of morbidity, mortality and disability due to NCDs through multi-sectoral collaboration at the county and national levels, to ensure the highest attainable standards of health and productivity throughout the life cycle for sustainable socioeconomic development. Thus NCDAK seeks to promote a NCD responsive policy environment through: advocacy, capacity building and knowledge management, meaningful engagement of people living with NCDs and resource mobilization. As the leading organisation NCDs advocacy, the focus to gather current evidence that inform advocacy towards access.

• Facebook: https://www.facebook.com/NCDAK2013
• Twitter: https://twitter.com/NCDAK
• LinkedIn: https://www.linkedin.com/company/75047265
• Instagram: https://www.instagram.com/ncdalliancekenya/
• YouTube Channel: https://www.youtube.com/channel/UC-tHpCIulS2i6LhtRS6cB6A/

The Colombian Foundation for Lung Cancer, Asthma, COPD, and other respiratory diseases – INSPIRAT, is a non-profit organization whose objective is the social development and representation of individuals and families affected by respiratory diseases. With the efficient use of human, technical, and financial resources, the foundation provides quality services, with equity and opportunity to the population, contributing to the elimination of barriers to access to health services and developing scientific, cultural, recreational, innovative, and social service activities to support through research, treatment, and care of respiratory diseases to support through research, treatment, and awareness of these diseases.The foundation pursues charitable purposes, common interest or utility, improvement of the quality of life, and social interest. It intervenes in pathologies such as lung cancer, asthma, COPD, respiratory syncytial virus, chronic rhinosinusitis with nasal polyps, pulmonary fibrosis, and Alpha-1.

• Facebook: https://www.facebook.com/FundacionInspirat/
• Twitter: https://twitter.com/InspiratCol
• Instagram: https://www.instagram.com/fundacioninspirat/

Fundación Padece provides assistance to patients, diagnosed and seeking diagnosis, of chronic immune-mediated dermatological diseases. of chronic immune-mediated dermatological diseases. It promotes the wellbeing and integral health of those suffering from Hidradenitis Suppurative Hidradenitis, Psoriasis, Atopic Dermatitis, Vitiligo and Chronic Urticaria, working together with the medical society.

• Facebook: https://www.facebook.com/padece.chile
• Twitter: https://www.twitter.com/padece_chile
• LinkedIn: https://www.linkedin.com/company/82115247/

Instagram URL: https://www.instagram.com/padece.chile Assign to Contact

The purpose of the Association will be as follows: a) Develop activities that promote knowledge of Pulmonary Hypertension and related lung diseases; b) Unite patients and families so that together they recognize and meet the needs of patients c) Support other associations that have similar fines. d) Promote and participate in activities that favor the interests of patients. e) Advise and help patients obtain specific medications for their disease. We have a national presence in the Republic of Costa Rica

• Facebook: https://www.facebook.com/asocrhipertensionpulmonar

Skin and allergic diseases organization has been providing informational, legal, and psychological support to patients with asthma and allergies for more than 10 years. They are working with government agencies to improve access to effective treatment for patients. They hold many events, such as school for patients, conferences, research on patients problems, assistance in accessing treatment. The organization has several resources and many subscribers among patients. They are also members of GlobalSkin and IFPA.

• YouTube: https://www.youtube.com/channel/UCLfw1rV6JUMAvVrIvbAjE9g/featured?disable_polymer=1&themeRefresh=1
• Instagram: https://www.instagram.com/skinallergic.ru/
• Facebook : https://www.facebook.com/skinallergic/

The Malta Eczema Society aims to provide support, information and practical advice via public talks and other activities and to increase awareness about eczema and the problems it may cause. The society has organised regular public talks about eczema by prominent local dermatologists and other speakers.

• Facebook: https://www.facebook.com/maltaeczemasociety

The Alliance to Prevent Legionnaires’ Disease is a non-profit coalition of patients, health advocates, health providers, building engineers, water treatment experts and manufacturers. We are actively working to educate residents, building owners, policy makers, media represe system managers and professionals, and government officials about the facts surrounding water quality, effective strategies for addressing causes of Legionnaires’, and better protecting public health.

The International FPIES Association (IFPIES) is a global patient advocacy organization dedicated to advancing research, education, support and awareness on behalf of pediatric and adult patients impacted by Food Protein-Induced Enterocolitis Syndrome (FPIES). IFPIES has spearheaded multiple initiatives shaping the clinical, research and advocacy landscape of non-IgE mediated food allergy including the creation of an official ICD-10 code, development of the first International Consensus Guidelines for the Diagnosis and Management of FPIES, a congressionally supported National FPIES Awareness Day and most recently, the inclusion of FPIES in the Consortium of Food Allergy Research (CoFar) resulting in the first-ever awarded NIH research grant. IFPIES participates in societal and committee work groups worldwide and represents nearly 2 million patients nationally. We are deeply committed to addressing comorbidities within our patient population while advocating for advancements that reflect the realities of living with FPIES.

“Asociación Guatemalteca Héroes de Esperanza” is an organization founded in 2003 by patients with Hemato-Oncologic diagnoses (different types of cancer). Hemato-Oncological diagnoses (different types of cancer); however, due to the need of patients in Guatemala, it also provides support to people with Hemophilia and Guatemala, currently also provides support to people diagnosed with Hemophilia and Atopic Dermatitis. In Atopic Dermatitis supports children and adults with the following services: information, education and patient empowerment, patient, caregiver, and family; patient navigation program, legal advice, advocacy, psychological support, and emotional support, defense of patients’ rights and accompaniment during their diagnosis and treatment to overcome the barriers and barriers and problems within the health care system.

• https://www.facebook.com/heroe.deesperanza
• https://www.instagram.com/heroes_de_esperanza/

Longfonds Nederland is the largest not-for-profit lung health organization and patient association in the Netherlands. They are one of the largest private funders of lung research in Europe and have been funding large-scale scientific research for more than six decades, aiming to generate essential knowledge about chronic lung diseases. The Lung Fund campaigns to improve the quality of care and supports patients. As part of the organization’s efforts to improve lung health, Longfonds actively advocates for policies that promote clean air. The head office is located in Amersfoort (Amsterdam region). The foundation has 80 employees and 4,500 volunteers nationwide.

• https://www.facebook.com/longfonds
• https://twitter.com/longfonds
• https://www.linkedin.com/company/longfonds
• https://www.instagram.com/longfonds
• https://www.youtube.com/channel/UCzSJfE3E-qrHBAMzLfcQ_dg

The Ho Chi Minh Society of Asthma, Allergy and Clinical Immunology (HSAACI)’s mission is to provide a professional network to foster the development of specialties and promote people’s health. The major activities of HSAACI include the establishment of Asthma and COPD outpatient care unit (ACOCU), medical education through the training courses for medical staff, increase of patients’ awareness and a pursuit of scientific research in the fields of asthma, allergy, and clinical immunology. The annual congress of HSAACI is organized to create a platform for scientific communication throughout the country.

• Facebook: https://www.facebook.com/hendumdlstphcm

Fundación Grupo de Apoyo Hap Carabobo (Hap Carabobo Support Group Foundation) it´s an organization of patients, caregivers, and physicians of Pulmonary Hypertension and respiratory diseases in Venezuela. They work disseminating and expanding tools to the patient and their caregiver for timely medical care and access to treatment and location of respiratory diseases professionals. They also recruit patients for counseling.

• Facebook: https://www.facebook.com/HapCarabobo
• Instagram: https://www.instagram.com/hapcarabobo/
• Twitter: https://twitter.com/HapCarabobo

Fundación Ramón Guerra – Somma Moreira provides diagnosis, treatment and research for allergies and other immunological and pneumological diseases.

• Facebook: https://www.facebook.com/fundacionasmayalergiaramonguerra/

Latin Health Leaders (former Pulmonary Hypertension Latin Society) is a non-profit organization 501(c)(3). They develop educational programs based on coaching for leadership in health, consultancies, and mentoring in the health area, aimed at strengthening the competencies of communities to promote people-centered health systems and maximize the well-being of patients. They empower patients, families, caregivers, leaders, and professionals of the health industry including EAP (Employee assistance programs). They have a network of expert consultants and collaborators with extensive experience with the Latino community and throughout the region, that support us with the needs and nature of each project. Their core project is SARE (The Respiratory Health Project for Latino patients).

• Facebook: https://www.facebook.com/LatinHealthLeaders
• Instagram: https://www.instagram.com/latinhealthleaders/
• YouTube: Latin Health Leaders
• LinkedIn: https://www.linkedin.com/company/latin-health-leaders/

Established by the parents of children with eczema, GPER was launched in 2015 and has since encouraged research to support evidence-based medical decision making and create urgency for better treatment.

• Facebook: https://www.facebook.com/parentsforeczemaresearch/
• Twitter: https://twitter.com/eczemaresearch

FAACT hosts programs and provides education on food allergies. Supporting patients of all ages and their caregivers, the group offers advice on dining out, joining support groups and bullying.

• Facebook: https://www.facebook.com/FAACTnews/
• Twitter: https://twitter.com/faactnews

The COPD Foundation is a 501(c)(3) not-for-profit organization created in 2004, with offices in Washington, D.C. and Miami, FL. The COPD Foundation was established to improve the lives of people with COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease through initiatives that expand services and speed innovations which will make treatment more effective and affordable. They do this through scientific research, education, advocacy, and awareness with the goal of disease prevention, slowed progression, and ultimately a cure.

• Facebook: https://www.facebook.com/COPDFoundation
• Twitter: https://twitter.com/copdfoundation

The Breathe Anthony J Chapman Asthma Foundation offers community services, launches fundraising events and provides community connections to support the local area.

• Facebook: https://www.facebook.com/breatheanthonyjchapmanasthmafoundation/