The Malta Eczema Society aims to provide support, information and practical advice via public talks and other activities and to increase awareness about eczema and the problems it may cause. The society has organised regular public talks about eczema by prominent local dermatologists and other speakers.
United States
110, Countryside Drive, Hendersonville, Tennessee, 37075, United States
Tonya Winders
The Alliance to Prevent Legionnaires’ Disease is a non-profit coalition of patients, health advocates, health providers, building engineers, water treatment experts and manufacturers. We are actively working to educate residents, building owners, policy makers, media represe system managers and professionals, and government officials about the facts surrounding water quality, effective strategies for addressing causes of Legionnaires’, and better protecting public health.
United States
330, River Avenue, Point Pleasant Beach, New Jersey, 08742, United States
Fallon Schultz
The International FPIES Association (IFPIES) is a global patient advocacy organization dedicated to advancing research, education, support and awareness on behalf of pediatric and adult patients impacted by Food Protein-Induced Enterocolitis Syndrome (FPIES). IFPIES has spearheaded multiple initiatives shaping the clinical, research and advocacy landscape of non-IgE mediated food allergy including the creation of an official ICD-10 code, development of the first International Consensus Guidelines for the Diagnosis and Management of FPIES, a congressionally supported National FPIES Awareness Day and most recently, the inclusion of FPIES in the Consortium of Food Allergy Research (CoFar) resulting in the first-ever awarded NIH research grant. IFPIES participates in societal and committee work groups worldwide and represents nearly 2 million patients nationally. We are deeply committed to addressing comorbidities within our patient population while advocating for advancements that reflect the realities of living with FPIES.
“Asociación Guatemalteca Héroes de Esperanza” is an organization founded in 2003 by patients with Hemato-Oncologic diagnoses (different types of cancer). Hemato-Oncological diagnoses (different types of cancer); however, due to the need of patients in Guatemala, it also provides support to people with Hemophilia and Guatemala, currently also provides support to people diagnosed with Hemophilia and Atopic Dermatitis. In Atopic Dermatitis supports children and adults with the following services: information, education and patient empowerment, patient, caregiver, and family; patient navigation program, legal advice, advocacy, psychological support, and emotional support, defense of patients’ rights and accompaniment during their diagnosis and treatment to overcome the barriers and barriers and problems within the health care system.
Longfonds Nederland is the largest not-for-profit lung health organization and patient association in the Netherlands. They are one of the largest private funders of lung research in Europe and have been funding large-scale scientific research for more than six decades, aiming to generate essential knowledge about chronic lung diseases. The Lung Fund campaigns to improve the quality of care and supports patients. As part of the organization’s efforts to improve lung health, Longfonds actively advocates for policies that promote clean air. The head office is located in Amersfoort (Amsterdam region). The foundation has 80 employees and 4,500 volunteers nationwide.
The Ho Chi Minh Society of Asthma, Allergy and Clinical Immunology (HSAACI)’s mission is to provide a professional network to foster the development of specialties and promote people’s health. The major activities of HSAACI include the establishment of Asthma and COPD outpatient care unit (ACOCU), medical education through the training courses for medical staff, increase of patients’ awareness and a pursuit of scientific research in the fields of asthma, allergy, and clinical immunology. The annual congress of HSAACI is organized to create a platform for scientific communication throughout the country.
Fundación Grupo de Apoyo Hap Carabobo (Hap Carabobo Support Group Foundation) it´s an organization of patients, caregivers, and physicians of Pulmonary Hypertension and respiratory diseases in Venezuela. They work disseminating and expanding tools to the patient and their caregiver for timely medical care and access to treatment and location of respiratory diseases professionals. They also recruit patients for counseling.
Uruguay
Bulevar General Artigas, Montevideo, Departamento de Montevideo, 11600, Uruguay
59827075709
Marylin Valentin Rostan, President
Fundación Ramón Guerra – Somma Moreira provides diagnosis, treatment and research for allergies and other immunological and pneumological diseases.
United States
9263, Northwest 9th Place, Plantation, Florida, 33324, United States
Migdalia Denis, Director
Latin Health Leaders (former Pulmonary Hypertension Latin Society) is a non-profit organization 501(c)(3). They develop educational programs based on coaching for leadership in health, consultancies, and mentoring in the health area, aimed at strengthening the competencies of communities to promote people-centered health systems and maximize the well-being of patients. They empower patients, families, caregivers, leaders, and professionals of the health industry including EAP (Employee assistance programs). They have a network of expert consultants and collaborators with extensive experience with the Latino community and throughout the region, that support us with the needs and nature of each project. Their core project is SARE (The Respiratory Health Project for Latino patients).
United States
117, State Street, Santa Barbara, California, 93101, United States
Korey Capozza, Director
Established by the parents of children with eczema, GPER was launched in 2015 and has since encouraged research to support evidence-based medical decision making and create urgency for better treatment.
United States
Olde West Chester, Ohio, 45071, United States
Eleanor Garrow-Holding
FAACT hosts programs and provides education on food allergies. Supporting patients of all ages and their caregivers, the group offers advice on dining out, joining support groups and bullying.
United States
3300, Ponce de Leon, Coral Gables, Florida, 33134, United States
Ruth Tal-Singer, PhD, President and Chief Scientific Officer
The COPD Foundation is a 501(c)(3) not-for-profit organization created in 2004, with offices in Washington, D.C. and Miami, FL. The COPD Foundation was established to improve the lives of people with COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease through initiatives that expand services and speed innovations which will make treatment more effective and affordable. They do this through scientific research, education, advocacy, and awareness with the goal of disease prevention, slowed progression, and ultimately a cure.
United States
727, Broadacre Avenue, Clawson, Michigan, 48017, United States
Laonis Quinn RN MSN, Executive Director
The Breathe Anthony J Chapman Asthma Foundation offers community services, launches fundraising events and provides community connections to support the local area.
The American Partnership for Eosinophilic Disorders (APFED) is a 501c3 nonprofit organization founded in December 2001 by a group of mothers of young children living with eosinophil-associated diseases. Their mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
United States
8229, Boone Boulevard, Vienna, Virginia, 22182, United States
Lynda Mitchell
Based in Virginia, the Allergy and Asthma Network was founded in 1985 to combat the inaccessibility of patient-friendly information on asthma and allergies. Through outreach, advocacy, education and research, the organisation has launched programs to help both patients and their caregivers.
United States
8201, Corporate Drive, Hyattsville, Maryland, 20785, United States
Sanaz Eftekhari, Director Corporate Affairs
Founded in 1953, AAFA is a non-profit organization – the oldest asthma and allergy patient group in the world. AAFA seeks to support asthma and allergy patients through advocacy, education and research.
United Kingdom
18, Mansell Street, London, England, E1 8AA, United Kingdom
Samantha Walker, Deputy Chief Executive
At Asthma + Lung UK believe that every breath matters – and that the right to breathe freely applies to everybody, regardless of income, age, ethnicity, gender, or background. Their vision is for a world where everyone has healthy lungs. A world where lung health is prioritised through better understanding, research, treatment and support. We are dedicated to helping create a world where good lung health and the ability to breathe freely are a basic right enjoyed by all.
United Kingdom
Edgington Road, Sidcup, England, DA14 5BH, United Kingdom
Simone Miles
Supporting those in the UK affected by all types of allergy, the charity offers a dedicated helpline and factsheets with information on symptoms and triggers. The charity is registered with the Fundraising Regulator.
Aspergillosis Trust is a patient advocacy group to support everyone with all forms of Aspergillosis worldwide. They have a support group and information on their website. They have just become the first charity worldwide that solely deals with Aspergillosis.
Turkey
İstanbul, 34020, Türkiye
905057904454
Ilkay Binnaz Nargaz Gulek, Chair of Executive Relations
AHDADER is a non-governmental organization that provides information and advice for patients with lung conditions. The group communicates research and health policy to the public in order to better support those in need.
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