DAH association is a non-profit organization that gathers patients suffering from pulmonary hypertension from all over Bosnia and Herzegovina. Members of the association are, in addition to patients, members of their families, as well as doctors. Their work is to raise awareness about pulmonary hypertension, point out the difficult situations of patients, fight for equal rights for all patients, and provide support to patients every day.

• Facebook URL : https://www.facebook.com/plucnahipertenzijabosneihercegovine
• Instagram URL:  https://www.instagram.com/phbih_dah/?hl=en
• YouTube URL: https://www.youtube.com/@plucnahipertenzijabih5537

Allergienet is a Belgian patient organization, a self-help group and advocacy organization for all people with allergies (atopy and type 2 inflammation). Our target audience includes all patients suffering from allergic symptoms or related conditions. We are particularly active in the field of atopic dermatitis, chronic urticaria, allergies, hay fever, food allergies, and anaphylaxis. Our active members are volunteers, and we aim to provide assistance where it is most needed. This can range from personal support and guidance, conducting awareness campaigns, to nationwide advocacy and everything in between. We are officially recognized as a charity in Belgium and are members of the Flemish Patients’ Platform. We seek to promote and support research and collaboration with other stakeholders. We strive for patient empowerment, improved quality, and a more holistic approach. We offer help and support to all.

• Facebook URL: https://www.facebook.com/Allergienet
• Instagram URL: https://www.instagram.com/allergienet/
• YouTube URL: https://www.youtube.com/@allergienet3578

PHURDA provides; Hotline/consultation on confirmation of diagnosis, access to medications, access to medical equipment, and access to transplantation. Advocacy/appeal to state and local authorities to protect the rights and interests of patients. Consultation with a psychologist. Assisting with medications and medical equipment with documented evidence of need and in order of priority. Providing temporary asylum (during martial law in Ukraine). Organizing meetings for patients. Organizing chat rooms for patient communication. Organization of training and internships for Ukrainian doctors in Ukraine and abroad.

• Facebook URL:  https://www.facebook.com/profile.php?id=100008303044326
• Instagram URL:  https://instagram.com/cfsisterdalila_phurda?igshid=NTc4MTIwNjQ2YQ==
• YouTube: https://youtube.com/@user-cj4jm3td1d?si=JzXT2E2ROu0ux_vN

This organization seeks to significantly influence the country’s public policies, as an organization free of conflicts of interest, to promote the exercise of the right to health before decision-makers and the population. Their projects have focused on Tobacco Control, Smoking Cessation, Conflict of Interest, Harmful Use of Alcohol, Prohibition of Trans Fats, Universal Health Coverage, Non-communicable Diseases, Asthma and soon, Mobility and Road Safety. In 2018 they received the Bloomberg Cessation Award at the World Tobacco or Health Conference, held in March 2018 in Cape Town, South Africa. Recently, in May of this year Salud Justa Mx received the World No Tobacco Day 2023 Award, presented by PAHO. Its director, Erick Antonio Ochoa, received this year the 2023 Judy Wilkenfeld International Award. This distinction was awarded to a Mexican for the first time.

• Facebook link: https://www.facebook.com/SaludJustaMx/
• Instagram link: https://www.instagram.com/SaludJustaMx_/
• Twitter link: https://twitter.com/i/flow/login?redirect_after_login=%2FSaludJustaMx
• YouTube link: https://www.youtube.com/channel/UCEbL5bIsy9aOoVqIRAw1Phg

This organization aims to begin the first registry of people diagnosed with respiratory diseases. Provide support to patients so that they have access to specialized medical care, empower the patient with teaching to understand and manage their disease. They also work to raise awareness among the population. They also carry out advocacy actions to update patient care according to scientific advances. Organize support groups and psychological support. Create alliances with civil and medical organizations for institutional strengthening.

• Facebook URL: https://www.facebook.com/profile.php?id=100094619271629
• Instagram URL: https://www.instagram.com/fundacion_panama_respira/?hl=es

The main objective of Chile Asma Fundacion is to promote the right of everyone to public, decent and quality health. Both in the medical, pharmaceutical, and social fields, where every respiratory patient can have access to a correct health program. Some of the services they offer to their patient community are to educate, make visible, guide, and be able to share experiences among the patients themselves. They operate online and in person.

• Facebook URL: https://www.facebook.com/Fundacionchileasma/
• Instagram URL: https://www.instagram.com/fundacionchileasma/

It is the Mission of Right2Breathe® to provide Education, Awareness, Free Screening, and Resources for people who are currently diagnosed or at higher risk of being diagnosed with respiratory disease. We believe that Everybody has a Right2Breathe.  The old adage, “When you do what you love, you don’t work a day in your life” applies to much more than just one’s career choices. We believe that the world is a better place when people use their gifts and talents to follow their dreams. Our mission is to inspire, educate, and empower people living with lung disease to rekindle the fire for their passions while providing the information necessary for them to take action. In addition to the patient community, we provide education for caregivers who support them and the clinicians who treat people living with respiratory disease.

• Facebook URL: https://www.facebook.com/Right2Breathe.org
• Twitter URL: https://www.twitter.com/Right_2_Breathe/
• LinkedIn URL: https://www.linkedin.com/company/right2breathe/
• Instagram URL: https://www.instagram.com/Right_2_Breathe/
• YouTube Channel: https://www.youtube.com/@right2breathe349

Company Info: The Non-communicable Diseases Alliance Kenya (NCDAK) is a Non-Governmental Organisation, registered in 2012 under section 10 of the NGOs Coordination Act 1990, registration number OP.218/051/12-0125/8213. With a vision of “NCD-free Kenya”, NCDAK seeks “to be the lead membership organisation in Kenya on all matters pertaining to NCDs“, in order to contribute to the reduction of the preventable burden of morbidity, mortality and disability due to NCDs through multi-sectoral collaboration at the county and national levels, to ensure the highest attainable standards of health and productivity throughout the life cycle for sustainable socioeconomic development. Thus NCDAK seeks to promote a NCD responsive policy environment through: advocacy, capacity building and knowledge management, meaningful engagement of people living with NCDs and resource mobilization. As the leading organisation NCDs advocacy, the focus to gather current evidence that inform advocacy towards access.

• Facebook: https://www.facebook.com/NCDAK2013
• Twitter: https://twitter.com/NCDAK
• LinkedIn: https://www.linkedin.com/company/75047265
• Instagram: https://www.instagram.com/ncdalliancekenya/
• YouTube Channel: https://www.youtube.com/channel/UC-tHpCIulS2i6LhtRS6cB6A/

The Colombian Foundation for Lung Cancer, Asthma, COPD, and other respiratory diseases – INSPIRAT, is a non-profit organization whose objective is the social development and representation of individuals and families affected by respiratory diseases. With the efficient use of human, technical, and financial resources, the foundation provides quality services, with equity and opportunity to the population, contributing to the elimination of barriers to access to health services and developing scientific, cultural, recreational, innovative, and social service activities to support through research, treatment, and care of respiratory diseases to support through research, treatment, and awareness of these diseases.The foundation pursues charitable purposes, common interest or utility, improvement of the quality of life, and social interest. It intervenes in pathologies such as lung cancer, asthma, COPD, respiratory syncytial virus, chronic rhinosinusitis with nasal polyps, pulmonary fibrosis, and Alpha-1.

• Facebook: https://www.facebook.com/FundacionInspirat/
• Twitter: https://twitter.com/InspiratCol
• Instagram: https://www.instagram.com/fundacioninspirat/

Fundación Padece provides assistance to patients, diagnosed and seeking diagnosis, of chronic immune-mediated dermatological diseases. of chronic immune-mediated dermatological diseases. It promotes the wellbeing and integral health of those suffering from Hidradenitis Suppurative Hidradenitis, Psoriasis, Atopic Dermatitis, Vitiligo and Chronic Urticaria, working together with the medical society.

• Facebook: https://www.facebook.com/padece.chile
• Twitter: https://www.twitter.com/padece_chile
• LinkedIn: https://www.linkedin.com/company/82115247/
• Instagram: https://www.instagram.com/padece.chile

The purpose of the Association will be as follows: a) Develop activities that promote knowledge of Pulmonary Hypertension and related lung diseases; b) Unite patients and families so that together they recognize and meet the needs of patients c) Support other associations that have similar fines. d) Promote and participate in activities that favor the interests of patients. e) Advise and help patients obtain specific medications for their disease. We have a national presence in the Republic of Costa Rica

• Facebook: https://www.facebook.com/asocrhipertensionpulmonar

Skin and allergic diseases organization has been providing informational, legal, and psychological support to patients with asthma and allergies for more than 10 years. They are working with government agencies to improve access to effective treatment for patients. They hold many events, such as school for patients, conferences, research on patients problems, assistance in accessing treatment. The organization has several resources and many subscribers among patients. They are also members of GlobalSkin and IFPA.

• YouTube: https://www.youtube.com/channel/UCLfw1rV6JUMAvVrIvbAjE9g/featured?disable_polymer=1&themeRefresh=1
• Instagram: https://www.instagram.com/skinallergic.ru/
• Facebook : https://www.facebook.com/skinallergic/

The Malta Eczema Society aims to provide support, information and practical advice via public talks and other activities and to increase awareness about eczema and the problems it may cause. The society has organised regular public talks about eczema by prominent local dermatologists and other speakers.

• Facebook: https://www.facebook.com/maltaeczemasociety

The Alliance to Prevent Legionnaires’ Disease is a non-profit coalition of patients, health advocates, health providers, building engineers, water treatment experts and manufacturers. We are actively working to educate residents, building owners, policy makers, media represe system managers and professionals, and government officials about the facts surrounding water quality, effective strategies for addressing causes of Legionnaires’, and better protecting public health.

The International FPIES Association (IFPIES) is a global patient advocacy organization dedicated to advancing research, education, support and awareness on behalf of pediatric and adult patients impacted by Food Protein-Induced Enterocolitis Syndrome (FPIES). IFPIES has spearheaded multiple initiatives shaping the clinical, research and advocacy landscape of non-IgE mediated food allergy including the creation of an official ICD-10 code, development of the first International Consensus Guidelines for the Diagnosis and Management of FPIES, a congressionally supported National FPIES Awareness Day and most recently, the inclusion of FPIES in the Consortium of Food Allergy Research (CoFar) resulting in the first-ever awarded NIH research grant. IFPIES participates in societal and committee work groups worldwide and represents nearly 2 million patients nationally. We are deeply committed to addressing comorbidities within our patient population while advocating for advancements that reflect the realities of living with FPIES.

“Asociación Guatemalteca Héroes de Esperanza” is an organization founded in 2003 by patients with Hemato-Oncologic diagnoses (different types of cancer). Hemato-Oncological diagnoses (different types of cancer); however, due to the need of patients in Guatemala, it also provides support to people with Hemophilia and Guatemala, currently also provides support to people diagnosed with Hemophilia and Atopic Dermatitis. In Atopic Dermatitis supports children and adults with the following services: information, education and patient empowerment, patient, caregiver, and family; patient navigation program, legal advice, advocacy, psychological support, and emotional support, defense of patients’ rights and accompaniment during their diagnosis and treatment to overcome the barriers and barriers and problems within the health care system.

• https://www.facebook.com/heroe.deesperanza
• https://www.instagram.com/heroes_de_esperanza/

Longfonds Nederland is the largest not-for-profit lung health organization and patient association in the Netherlands. They are one of the largest private funders of lung research in Europe and have been funding large-scale scientific research for more than six decades, aiming to generate essential knowledge about chronic lung diseases. The Lung Fund campaigns to improve the quality of care and supports patients. As part of the organization’s efforts to improve lung health, Longfonds actively advocates for policies that promote clean air. The head office is located in Amersfoort (Amsterdam region). The foundation has 80 employees and 4,500 volunteers nationwide.

• https://www.facebook.com/longfonds
• https://twitter.com/longfonds
• https://www.linkedin.com/company/longfonds
• https://www.instagram.com/longfonds
• https://www.youtube.com/channel/UCzSJfE3E-qrHBAMzLfcQ_dg

The Ho Chi Minh Society of Asthma, Allergy and Clinical Immunology (HSAACI)’s mission is to provide a professional network to foster the development of specialties and promote people’s health. The major activities of HSAACI include the establishment of Asthma and COPD outpatient care unit (ACOCU), medical education through the training courses for medical staff, increase of patients’ awareness and a pursuit of scientific research in the fields of asthma, allergy, and clinical immunology. The annual congress of HSAACI is organized to create a platform for scientific communication throughout the country.

• Facebook: https://www.facebook.com/hendumdlstphcm

Fundación Grupo de Apoyo Hap Carabobo (Hap Carabobo Support Group Foundation) it´s an organization of patients, caregivers, and physicians of Pulmonary Hypertension and respiratory diseases in Venezuela. They work disseminating and expanding tools to the patient and their caregiver for timely medical care and access to treatment and location of respiratory diseases professionals. They also recruit patients for counseling.

• Facebook: https://www.facebook.com/HapCarabobo
• Instagram: https://www.instagram.com/hapcarabobo/
• Twitter: https://twitter.com/HapCarabobo

Fundación Ramón Guerra – Somma Moreira provides diagnosis, treatment and research for allergies and other immunological and pneumological diseases.

• Facebook: https://www.facebook.com/fundacionasmayalergiaramonguerra/