APFED – American Partnership for Eosinophilic Disorders (United States of America)
Atlanta, Georgia, United States
Mary Jo Strobel, Executive Director
The American Partnership for Eosinophilic Disorders (APFED) is a 501c3 nonprofit organization founded in December 2001 by a group of mothers of young children living with eosinophil-associated diseases. Their mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
Allergy and Asthma Network (United States of America)
8229, Boone Boulevard, Vienna, Virginia, 22182, United States
Tonya Winders, President & CEO
Based in Virginia, the Allergy and Asthma Network was founded in 1985 to combat the inaccessibility of patient-friendly information on asthma and allergies. Through outreach, advocacy, education and research, the organisation has launched programs to help both patients and their caregivers.
AAIDA – Advocacy & Awareness for Immune Disorders Association (United States of America)
6201, Fairview Road, Charlotte, North Carolina, 28210, United States
Lauren Dunlap, Executive Director
AAIDA is dedicated to patients living with various immune dysregulation conditions which focuses on advocacy campaigns at both the State and Federal levels, education initiatives and research opportunities. AAIDA also provides patient and provider assistance with insurance issues/denials and medication assistance programs available across the U.S.
AAFA – Asthma and Allergy Foundation of America (United States of America)
8201, Corporate Drive, Hyattsville, Maryland, 20785, United States
Sanaz Eftekhari, Director Corporate Affairs
Founded in 1953, AAFA is a non-profit organization – the oldest asthma and allergy patient group in the world. AAFA seeks to support asthma and allergy patients through advocacy, education and research.
Asthma + Lung UK (United Kingdom)
18, Mansell Street, London, England, E1 8AA, United Kingdom
Samantha Walker, Deputy Chief Executive
At Asthma + Lung UK believe that every breath matters – and that the right to breathe freely applies to everybody, regardless of income, age, ethnicity, gender, or background. Their vision is for a world where everyone has healthy lungs. A world where lung health is prioritised through better understanding, research, treatment and support. We are dedicated to helping create a world where good lung health and the ability to breathe freely are a basic right enjoyed by all.
- Facebook: https://www.facebook.com/asthmalunguk/
Allergy UK (United Kingdom)
Edgington Road, Sidcup, England, DA14 5BH, United Kingdom
Supporting those in the UK affected by all types of allergy, the charity offers a dedicated helpline and factsheets with information on symptoms and triggers. The charity is registered with the Fundraising Regulator.
Aspergillosis Trust (United Kingdom)
Jill Fairweather, Co-Founder
Aspergillosis Trust is a patient advocacy group to support everyone with all forms of Aspergillosis worldwide. They have a support group and information on their website. They have just become the first charity worldwide that solely deals with Aspergillosis.
AHDADER – Turkish Association for Patients with Lung Disease (Turkey)
İstanbul, 34020, Türkiye
Ilkay Binnaz Nargaz Gulek, Chair of Executive Relations
AHDADER is a non-governmental organization that provides information and advice for patients with lung conditions. The group communicates research and health policy to the public in order to better support those in need.
Association Sante Meilleure Vie Meilleure SM-VM (Togo)
Rue Legredah, Lomé, Région maritime, Togo
Kelechi Nwangoro, Director Operation/Programme
Based on its philosophy, “Is there a more precious good for a man than health?” the association Santé Meilleure Vie Meilleure (SM-VM) has a health promotion program for all. With patients suffering from different diseases, it develops solutions to alleviate the pain and treatment of other patients. The association SM-VM organizes with the patients it has already accompanied and who have become members, information, and awareness campaigns the in the communities on the different pathologies it supports. It trains community health workers in vulnerable communities to help communities promote their health. In partnership with health facilities nationwide, SM-VM accompanies patients suffering from food allergies, cystic fibrosis, cystic fibrosis, allergy, atopic dermatitis, and asthma. It should also be noted that SM-VM accompanies patients in palliative care.
aha! Allergiezentrum Schweiz (Swiss Allergy Center) (Switzerland)
20, Scheibenstrasse, Bern, Bern, 3014, Switzerland
Based in Bern, aha! disseminates information about the causes, prevention and treatment of allergies and intolerances. The center is dedicated to supporting the three million people who are affected by allergies and intolerances in Switzerland.
Astma och Allergi Förbundet (Swedish Asthma and Allergy Association) (Sweden)
52, Rosenlundsgatan, Stockholm, Stockholms län, 118 63, Sweden
Kristina Ljungros, Secretary General
The Asthma and Allergy Association seeks to influence society to improve standards for people with allergic diseases. The association prioritises increased accessibility to different environments for people with allergies and hypersensitivity.
Sevilla Respira (Spain)
Seville, Andalusia, Spain
Raquel Gomez Benitez, Secretary
Sevilla Respira is a non-profit organisation that aims to raise awareness about respiratory diseases, sharing local events and programs with the community.
Hipertensión Pulmonar España (Spain)
7, Riera de la Salut, Sant Feliu de Llobregat, Catalunya, 08980, Spain
Pulmonary Hypertension Spain (HPE) works to promote the health, in a broad sense, of all people diagnosed with Pulmonary Hypertension and their families, to improve their quality of life in all aspects, promote and improve as far as possible their level of care, work, and social life.
Fundación Lovexair (Spain)
30, Paseo de las Delicias, Madrid, Comunidad de Madrid, 28045, Spain
Shane Fitch, President
The Fundación Lovexair is a non-profit organization that provides care, support and guidance for those with respiratory diseases and their caregivers. The organization aims to do this by sensitizing society about the importance of early diagnosis, prevention and treatment.
Tudela de Agüeria, Principado de Asturias, 33919, Spain
Armando Ruiz, Global Relationships Manager
The Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FANAER) was established in 2007 by respiratory patients. The non-profit organization aims to improve care and awareness around allergies and respiratory diseases.
APEPOC -Asociacion de Pacientes con EPOC (Spain)
2, Calle Uría, Luarca, Principado de Asturias, 33700, Spain
APEPOC provides information on chronic obstructive pulmonary disease (COPD) and defends the rights and improves the quality of life of patients. The organization also provides healthcare services for its associates.
AADA – Asociación de Afectados por la Dermatitis Atópica (Spain)
27, Calle de Orense, Madrid, Comunidad de Madrid, 28020, Spain
Belen Delgado Díez, Vicedirector
AADA (Association of people affected with Atopic Dermatitis) was founded in 2017 and focused on giving trusted information to the patients and making this disease more understandable for the population.
They give voice to the patient community to achieve the recognition and normalization of AD, defending their interests before health policymakers and offering direct support and reliable information to patients and families.
AAUC – Asociación de Afectados de Urticaria Crónica (Spain)
83, Carrer de Sardenya, Barcelona, Catalunya, 08018, Spain
The Association AAUC was founded 2012 and is a non-profit organization that groups together people affected by chronic urticaria with the aim of improving their quality of life.
ASMABI – Asociacion De Apoyo A Personas Afectadas Por El Asma De Bizkaia / Asmak Kaltetutako Pertsonei Laguntzeko Bizkaiko Elkartea (Spain)
6, Gandasegui Remigio Mons Etxetaldea, Bilbo, Euskadi, 48006, Spain
Irantzu Muerza Santos, President
ASMABI is an Asthma patient organization, that was founded 2019. Its mission is to create awareness for the chronic disease Asthma. ASMABI represents the group of Asthma patients in fighting for the rights for acess to health care, for psychological service, and more.
2, Calle Linaje, Málaga, Andalucía, 29001, Spain
Maria Victoria Palomares del Moral
ALERMA is a non-profit organization, whose objective is the care, information, and training of allergic and respiratory patients. It is provincial and has about two hundred patients. Our activities revolve around the training of patients, through talks given by professionals: Pulmonologists, Allergists, Psychologists, Physiotherapists, etc. In addition to workshops on inhaler management, management of your disease, and knowledge of your disease. We also celebrate the World Days of diseases that cover the entire respiratory field: Asthma, COPD, Apnea, etc. with an information table in Hospitals and Shopping Centers. On World Asthma Day, we carried out a march along the “Paseo Marítimo” de Málaga, to deepen the idea of the need for exercise for these patients.
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