Asthma + Lung UK (United Kingdom)
United Kingdom
18, Mansell Street, London, England, E1 8AA, United Kingdom
Samantha Walker, Deputy Chief Executive
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At Asthma + Lung UK believe that every breath matters – and that the right to breathe freely applies to everybody, regardless of income, age, ethnicity, gender, or background. Their vision is for a world where everyone has healthy lungs. A world where lung health is prioritised through better understanding, research, treatment and support. We are dedicated to helping create a world where good lung health and the ability to breathe freely are a basic right enjoyed by all.
- Facebook: https://www.facebook.com/asthmalunguk/
Allergy UK (United Kingdom)
United Kingdom
Edgington Road, Sidcup, England, DA14 5BH, United Kingdom
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Supporting those in the UK affected by all types of allergy, the charity offers a dedicated helpline and factsheets with information on symptoms and triggers. The charity is registered with the Fundraising Regulator.
Aspergillosis Trust (United Kingdom)
Jill Fairweather, Co-Founder
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Aspergillosis Trust is a patient advocacy group to support everyone with all forms of Aspergillosis worldwide. They have a support group and information on their website. They have just become the first charity worldwide that solely deals with Aspergillosis.
AHDADER – Turkish Association for Patients with Lung Disease (Turkey)
Turkey
İstanbul, 34020, Türkiye
Ilkay Binnaz Nargaz Gulek, Chair of Executive Relations
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AHDADER is a non-governmental organization that provides information and advice for patients with lung conditions. The group communicates research and health policy to the public in order to better support those in need.
Association Sante Meilleure Vie Meilleure SM-VM (Togo)
Togo
Rue Legredah, Lomé, Région maritime, Togo
Somabey Dossavi, President
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Based on its philosophy, “Is there a more precious good for a man than health?” the association Santé Meilleure Vie Meilleure (SM-VM) has a health promotion program for all. With patients suffering from different diseases, it develops solutions to alleviate the pain and treatment of other patients. The association SM-VM organizes with the patients it has already accompanied and who have become members, information, and awareness campaigns the in the communities on the different pathologies it supports. It trains community health workers in vulnerable communities to help communities promote their health. In partnership with health facilities nationwide, SM-VM accompanies patients suffering from food allergies, cystic fibrosis, cystic fibrosis, allergy, atopic dermatitis, and asthma. It should also be noted that SM-VM accompanies patients in palliative care.
aha! Allergiezentrum Schweiz (Swiss Allergy Center) (Switzerland)
Switzerland
20, Scheibenstrasse, Bern, Bern, 3014, Switzerland
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Based in Bern, aha! disseminates information about the causes, prevention and treatment of allergies and intolerances. The center is dedicated to supporting the three million people who are affected by allergies and intolerances in Switzerland.
Astma och Allergi Förbundet (Swedish Asthma and Allergy Association) (Sweden)
Sweden
52, Rosenlundsgatan, Stockholm, Stockholms län, 118 63, Sweden
Kristina Ljungros, Secretary General
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The Asthma and Allergy Association seeks to influence society to improve standards for people with allergic diseases. The association prioritises increased accessibility to different environments for people with allergies and hypersensitivity.
Sevilla Respira (Spain)
Spain
Seville, Andalusia, Spain
Raquel Gomez Benitez, Secretary
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Sevilla Respira is a non-profit organisation that aims to raise awareness about respiratory diseases, sharing local events and programs with the community.
Hipertensión Pulmonar España (Spain)
Spain
7, Riera de la Salut, Sant Feliu de Llobregat, Catalunya, 08980, Spain
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Pulmonary Hypertension Spain (HPE) works to promote the health, in a broad sense, of all people diagnosed with Pulmonary Hypertension and their families, to improve their quality of life in all aspects, promote and improve as far as possible their level of care, work, and social life.
Fundación Lovexair (Spain)
Spain
30, Paseo de las Delicias, Madrid, Comunidad de Madrid, 28045, Spain
Shane Fitch, President
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The Fundación Lovexair is a non-profit organization that provides care, support and guidance for those with respiratory diseases and their caregivers. The organization aims to do this by sensitizing society about the importance of early diagnosis, prevention and treatment.
FENAER (Spain)
Spain
Tudela de Agüeria, Principado de Asturias, 33919, Spain
Armando Ruiz, Global Relationships Manager
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The Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FANAER) was established in 2007 by respiratory patients. The non-profit organization aims to improve care and awareness around allergies and respiratory diseases.
APEPOC -Asociacion de Pacientes con EPOC (Spain)
Spain
2, Calle Uría, Luarca, Principado de Asturias, 33700, Spain
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APEPOC provides information on chronic obstructive pulmonary disease (COPD) and defends the rights and improves the quality of life of patients. The organization also provides healthcare services for its associates.
AADA – Asociación de Afectados por la Dermatitis Atópica (Spain)
Spain
27, Calle de Orense, Madrid, Comunidad de Madrid, 28020, Spain
Belen Delgado Díez, Vicedirector
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AADA (Association of people affected with Atopic Dermatitis) was founded in 2017 and focused on giving trusted information to the patients and making this disease more understandable for the population.
They give voice to the patient community to achieve the recognition and normalization of AD, defending their interests before health policymakers and offering direct support and reliable information to patients and families.
AAUC – Asociación de Afectados de Urticaria Crónica (Spain)
Spain
83, Carrer de Sardenya, Barcelona, Catalunya, 08018, Spain
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The Association AAUC was founded 2012 and is a non-profit organization that groups together people affected by chronic urticaria with the aim of improving their quality of life.
ASMABI – Asociacion De Apoyo A Personas Afectadas Por El Asma De Bizkaia / Asmak Kaltetutako Pertsonei Laguntzeko Bizkaiko Elkartea (Spain)
Spain
6, Gandasegui Remigio Mons Etxetaldea, Bilbo, Euskadi, 48006, Spain
Irantzu Muerza Santos, President
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ASMABI is an Asthma patient organization, that was founded 2019. Its mission is to create awareness for the chronic disease Asthma. ASMABI represents the group of Asthma patients in fighting for the rights for acess to health care, for psychological service, and more.
ALERMA (Spain)
Spain
2, Calle Linaje, Málaga, Andalucía, 29001, Spain
Maria Victoria Palomares del Moral
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ALERMA is a non-profit organization, whose objective is the care, information, and training of allergic and respiratory patients. It is provincial and has about two hundred patients. Our activities revolve around the training of patients, through talks given by professionals: Pulmonologists, Allergists, Psychologists, Physiotherapists, etc. In addition to workshops on inhaler management, management of your disease, and knowledge of your disease. We also celebrate the World Days of diseases that cover the entire respiratory field: Asthma, COPD, Apnea, etc. with an information table in Hospitals and Shopping Centers. On World Asthma Day, we carried out a march along the “Paseo Marítimo” de Málaga, to deepen the idea of the need for exercise for these patients.
AEPNAA – Spanish Association of People with Allergy to Food and Latex (Spain)
Spain
63, Calle de Cronos, Madrid, Comunidad de Madrid, 28037, Spain
Angel Sanchey Sanz, President
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AEPNAA is an association that works for people with food and latex allergy and their families. AEPNAA is a non-profit entity and has received in July 2019 the Declaration of Public Utility by the Ministry of Interior of the Government of Spain. The Association has a Board of Directors, democratically elected every two years by a vote of the members of the association. For the development of its functions, AEPNAA has five working groups in charge of the different areas of work: food safety, brands, medicines, and communication and education. AEPNAA also has a Scientific Committee made up of prestigious allergists who advise the association on allergy-related issues.
NAEP – National Asthma Education Programme (South Africa)
South Africa
5, Gordon Street, Cape Town, Western Cape, 8001, South Africa
Dr Visva Naidoo (Chairperson)
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The non-profit organization seeks to disseminate knowledge about asthma diagnosis and treatment. The programme follows the management guidelines of GINA (Global Initiative for Asthma), SATS (South African Thoracic Society) and ALLSA (Allergy Society of Asthma). NAEP runs a 6-month distance learning asthma educator course for medical professionals and educates the public and medical personnel on all things asthma.
Atopika, NGO for patients with atopic dermatitis (Slovenia)
Slovenia
12, Stantetova ulica, Maribor, Upravna enota Maribor, 2000, Slovenia
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Atopika, the non-governmental and non-profit organization, was established to support atopic dermatitis patients. The organization provides information on atopic dermatitis, asthma and allergies. Since 2018, it has been part of the International Alliance of Dermatology Patients Organizations.
Atopic Dermatitis Association (Društvo AD) (Slovenia)
Slovenia
95, Mencingerjeva ulica, Ljubljana, Ljubljana, 1000, Slovenia
Spela Novak, President and Founder
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The independent, voluntary, and non-profit association provides information on all atopic diseases for patients and their relatives. The organization aims to improve the quality of life for patients through the exchange of knowledge, support groups, events, and working with schools and kindergartens with healthcare facilities. Whatever it takes to help patients and their close ones.
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