United States
9263, Northwest 9th Place, Plantation, Florida, 33324, United States
Migdalia Denis, Director
Latin Health Leaders (former Pulmonary Hypertension Latin Society) is a non-profit organization 501(c)(3). They develop educational programs based on coaching for leadership in health, consultancies, and mentoring in the health area, aimed at strengthening the competencies of communities to promote people-centered health systems and maximize the well-being of patients. They empower patients, families, caregivers, leaders, and professionals of the health industry including EAP (Employee assistance programs). They have a network of expert consultants and collaborators with extensive experience with the Latino community and throughout the region, that support us with the needs and nature of each project. Their core project is SARE (The Respiratory Health Project for Latino patients).
United States
117, State Street, Santa Barbara, California, 93101, United States
Korey Capozza, Director
Established by the parents of children with eczema, GPER was launched in 2015 and has since encouraged research to support evidence-based medical decision making and create urgency for better treatment.
United States
Olde West Chester, Ohio, 45071, United States
Eleanor Garrow-Holding
FAACT hosts programs and provides education on food allergies. Supporting patients of all ages and their caregivers, the group offers advice on dining out, joining support groups and bullying.
United States
3300, Ponce de Leon, Coral Gables, Florida, 33134, United States
Jean Wright, MD
The COPD Foundation is a 501(c)(3) not-for-profit organization created in 2004, with offices in Washington, D.C. and Miami, FL. The COPD Foundation was established to improve the lives of people with COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease through initiatives that expand services and speed innovations which will make treatment more effective and affordable. They do this through scientific research, education, advocacy, and awareness with the goal of disease prevention, slowed progression, and ultimately a cure.
United States
727, Broadacre Avenue, Clawson, Michigan, 48017, United States
Laonis Quinn RN MSN, Executive Director
The Breathe Anthony J Chapman Asthma Foundation offers community services, launches fundraising events and provides community connections to support the local area.
The American Partnership for Eosinophilic Disorders (APFED) is a 501c3 nonprofit organization founded in December 2001 by a group of mothers of young children living with eosinophil-associated diseases. Their mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
United States
8229, Boone Boulevard, Vienna, Virginia, 22182, United States
Lynda Mitchell
Based in Virginia, the Allergy and Asthma Network was founded in 1985 to combat the inaccessibility of patient-friendly information on asthma and allergies. Through outreach, advocacy, education and research, the organisation has launched programs to help both patients and their caregivers.
United States
8201, Corporate Drive, Hyattsville, Maryland, 20785, United States
Sanaz Eftekhari, Director Corporate Affairs
Founded in 1953, AAFA is a non-profit organization – the oldest asthma and allergy patient group in the world. AAFA seeks to support asthma and allergy patients through advocacy, education and research.
United Kingdom
18, Mansell Street, London, England, E1 8AA, United Kingdom
Samantha Walker, Deputy Chief Executive
At Asthma + Lung UK believe that every breath matters – and that the right to breathe freely applies to everybody, regardless of income, age, ethnicity, gender, or background. Their vision is for a world where everyone has healthy lungs. A world where lung health is prioritised through better understanding, research, treatment and support. We are dedicated to helping create a world where good lung health and the ability to breathe freely are a basic right enjoyed by all.
United Kingdom
Edgington Road, Sidcup, England, DA14 5BH, United Kingdom
Simone Miles
Supporting those in the UK affected by all types of allergy, the charity offers a dedicated helpline and factsheets with information on symptoms and triggers. The charity is registered with the Fundraising Regulator.
Aspergillosis Trust is a patient advocacy group to support everyone with all forms of Aspergillosis worldwide. They have a support group and information on their website. They have just become the first charity worldwide that solely deals with Aspergillosis.
Turkey
İstanbul, 34020, Türkiye
905057904454
Ilkay Binnaz Nargaz Gulek, Chair of Executive Relations
AHDADER is a non-governmental organization that provides information and advice for patients with lung conditions. The group communicates research and health policy to the public in order to better support those in need.
Based on its philosophy, “Is there a more precious good for a man than health?” the association Santé Meilleure Vie Meilleure (SM-VM) has a health promotion program for all. With patients suffering from different diseases, it develops solutions to alleviate the pain and treatment of other patients. The association SM-VM organizes with the patients it has already accompanied and who have become members, information, and awareness campaigns the in the communities on the different pathologies it supports. It trains community health workers in vulnerable communities to help communities promote their health. In partnership with health facilities nationwide, SM-VM accompanies patients suffering from food allergies, cystic fibrosis, cystic fibrosis, allergy, atopic dermatitis, and asthma. It should also be noted that SM-VM accompanies patients in palliative care.
Switzerland
20, Scheibenstrasse, Bern, Bern, 3014, Switzerland
Georg Schaeppi, CEO
Based in Bern, aha! disseminates information about the causes, prevention and treatment of allergies and intolerances. The center is dedicated to supporting the three million people who are affected by allergies and intolerances in Switzerland.
Sweden
52, Rosenlundsgatan, Stockholm, Stockholms län, 118 63, Sweden
Kristina Ljungros, Secretary General
The Asthma and Allergy Association seeks to influence society to improve standards for people with allergic diseases. The association prioritises increased accessibility to different environments for people with allergies and hypersensitivity.
Sevilla Respira is a non-profit organisation that aims to raise awareness about respiratory diseases, sharing local events and programs with the community.
Spain
7, Riera de la Salut, Sant Feliu de Llobregat, Catalunya, 08980, Spain
Alicia García
Pulmonary Hypertension Spain (HPE) works to promote the health, in a broad sense, of all people diagnosed with Pulmonary Hypertension and their families, to improve their quality of life in all aspects, promote and improve as far as possible their level of care, work, and social life.
Spain
30, Paseo de las Delicias, Madrid, Comunidad de Madrid, 28045, Spain
Shane Fitch, President
The Fundación Lovexair is a non-profit organization that provides care, support and guidance for those with respiratory diseases and their caregivers. The organization aims to do this by sensitizing society about the importance of early diagnosis, prevention and treatment.
Spain
Tudela de Agüeria, Principado de Asturias, 33919, Spain
Armando Ruiz, Global Relationships Manager
The Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FANAER) was established in 2007 by respiratory patients. The non-profit organization aims to improve care and awareness around allergies and respiratory diseases.
Spain
2, Calle Uría, Luarca, Principado de Asturias, 33700, Spain
Ivan Perez, Treasurer
APEPOC provides information on chronic obstructive pulmonary disease (COPD) and defends the rights and improves the quality of life of patients. The organization also provides healthcare services for its associates.
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