GAAPP Academy: Member Organization Success Stories 2
Tonya Winders, GAAPP President
From the President’s Desk
How do I possibly say “thank you” to all who made GAAPP Summit 2024 such a success?
It truly was an inspirational two days which will guide our work for the year ahead. Thank you all & please complete the brief feedback survey here to make next year even better!
This month’s newsletter is packed full of opportunities to raise your voice & raise some funds for your organization. Check out the links here for all upcoming awareness days & the chance to share your video story firsthand.
Welcome to our largest group of new members! We are quickly approaching 150 member organizations spanning the globe & even signed two new organizations into existence at the Summit.
Finally, don’t miss our next GAAPP Academy where we will celebrate more member successes & best practices as you finalize your plans for 2025. Also check out our latest Passion For Patients podcasts. As always, we remain eager to support your important work. Please don’t hesitate to reach out for help!
Stay passionate!
Tonya
GAAPP News & Opportunities
GAAPP Summit 2024!
Thank you for coming to GAAPP Summit, almost 100 organizations were present in person and 20 online (from 143 member organizations at that time), making this event our best-attended event ever. Please see the pictures of the event and re-watch the event if you missed anything here.
You can also take a look at key points of discussion made during our breakout session by region and by disease here.
The summary of the Annual General Meeting (AGM) is now available for review, highlighting key decisions and discussions. You can access the document for a detailed overview of the meeting outcomes and future plans here.
GAAPP Summit 2024 Feedback Survey
We hope you enjoyed our GAAPP Summit 2024. Your feedback will help us improve future events. Please take a few minutes to answer the questions. This survey is conducted in English and Spanish.
Are you a person with COPD or chronic urticaria? Or are you a caregiver for someone with one of these conditions?
We are building a video library of awareness and advocacy short stories from people like you. GAAPP would like to hear from people interested in a paid opportunity to record a short video about your experiences.
Want to learn more?
Email Kristen Willard, VP of Education, at info@gaapp.org
Member News
Constitution signing ceremony
We are thrilled to announce the official creation of AMISARE and Pink Tree Foundation, celebrated with a constitution signing ceremony at the GAAPP Summit in Vienna. These two organizations were established with the support of GAAPP. This milestone marks an exciting new chapter, and we are grateful to be a part of it.
Reminders
Chronic Cough Awareness Day 2024 Webinar
We’re thrilled to invite you to the very first Chronic Cough Awareness Day webinar, happening on 15 October 2024 at 14h CET. This groundbreaking event aims to raise awareness about chronic cough, a condition affecting millions worldwide.
Hosted by experts in pulmonology and respiratory health, this webinar will explore the latest research, treatment options, and personal stories from individuals living with chronic cough. Whether you’re a healthcare professional, patient, caregiver, or simply interested in learning more, this webinar offers valuable insights and opportunities for discussion.
Don’t miss this chance to connect with the global community dedicated to improving awareness and understanding of chronic cough.
Let’s make a difference together on Chronic Cough Awareness Day!
GAAPP Academy: Member Organization Success Stories 2
Join Kristen Willard, GAAPP VP of Education, and a new lineup of nonprofit leaders from your fellow GAAPP member organizations on 23 October 2024 at 15h CET. Learn about their innovating initiatives and lessons learned from international member organization speakers. There is something to learn for everyone, no matter your nonprofit’s location or size! We look forward to seeing you there. Register here.
This will be a recorded event.
Have questions about how to optimize your program’s implementation?
Email info@gaapp.org
New Members
Lung Foundation Australia
Australia
PAH Association Japan
Japan
Asociación Española de Esofagitis Eosinofílica (AEDESEO)
Spain
Frontiers for Hemophilia and Bleeding Disorders
Sierra Leone
Associazione Italiana Bronchiettasie APS
Italy
Asociación Panameña de Enfermedades de la Piel
Panama
COPD Foundation South Africa
South Africa
Associazione Allergici al Lattice ODV
Italy
Fundación Colombiana para Enfermedades Huérfanas o Poco Frecuentes FUNCOLEHF
Colombia
The Israeli Lung Cancer Foundation
Israel
PCD Association
Israel
We proudly represent 143 organizations in 60 countries from all continents
We advocate for 20Pathologies across all allergy, atopic, and airways diseases
More than 30 papers published and supported more than 30 multi-stakeholder projects
