October is one of my favorite months for so many reasons! I hope you have had a productive month as well as we turn into the final months of 2024.
This month we welcome two new members from Colombia, Nepal, Gambia and Norway… we now have 147 organizations!
We also highlight the work of HAP Carabobo with the support from GAAPP Impact Funds who opened a clinic in Venezuela for the holistic monitoring and rehabilitation of pulmonary hypertension patients following the needs of lack of access to care in the country given its political situation. Hundreds of patients will have now access to care thanks to this efforts and the healthcare professionals that will be donating their time at the clinic. Keep up the great work!
GAAPP organized and hosted the first World Chronic Cough Day on October 15. Listen to the webinar if you missed it and don’t forget to claim your communications grant for amplifying information about this underrepresented disease.
GAAPP leadership presented at World Patients Alliance in Cape Town and the board finalized our 2025 Strategic Plan. We will host a webinar in early January to reveal the full scope of work for 2025. Vildana and I also had the privilege of attending ISAD in Doha where we learned the latest in science of atopic dermatitis and collaborated with several GlobalSkin leaders. It truly is an exciting time in this world of atopic and airway diseases!
Please let us know how we can continue to support your organizations.
All my best Tonya
GAAPP News & Opportunities
World Patients Alliance (WPA) Conference
GAAPP was present in full force at the WPA Conference in Cape Town, South Africa.
First Victor Gascon Moreno, our VP of Awareness and Operations presented “AI in Health: From Research to Advocacy”. Tonya Winders, President & CEO, moderated the session on “Patient-Centered Care: Supporting those who care for us”. Vildana Mujkić and Migdalia Denis, our Board Members, Chaired 2 other sessions in the program including the impactful session on “Social Media for Patient Organizations” with Ravi Ruparel from PlatformCan.
Thank you World Patients Alliance for inviting us and be part of your global community.
COPD and Alpha-1 antritrypsin deficiency Awareness Month
Both COPD and Alpha-1 antritrypsin deficiency share November as Awareness Month! We thank all our member organizations who work tirelessly in these conditions to improve outcomes for those affected. GAAPP continues our awareness, education, advocacy, and research efforts to improve the lives of people with Alpha-1 and COPD and their families.
A few updates on our work in this space:
We are excited to tell you about a new resource! GAAPP worked with partners in creating the COPD Patient Map, an advocacy tool that can be used to highlight barriers encountered by those with COPD, the implications of those barriers, and calls to action for decision makers. Read more about the tool and download it in our new blog post.
Coming soon! In November, we will be adding Alpha-1 Antitrypsin Deficiency educational information to our website. You will be able to find this at GAAPP.org under the Diseases menu.
Be sure to check out our social media feeds for more information during this awareness month, including important messaging from Speak Up for COPD. If you have not yet read the new Global State of COPD Report, be sure to take a look. Check our social media soon for 10 COPD country-specific profiles: Australia, Belgium, Brazil, Canada, China, Malaysia, Nigeria, Poland, Saudi Arabia and the UK.
GAAPP also participated in the development of the COPD Index, a free tool from the Copenhagen Institute for Futures Studies, that aims to improve COPD care and prevention through increasing awareness, driving action, and strengthening commitment from decisionmakers. Visit respiratoryhealth.org to download the full report.
Job opportunities at GAAPP
Speak Up for COPD Coalition Project Lead
Seeking an experienced project lead to oversee planning, implementation, and evaluation for the Speak Up for COPD Coalition. Responsibilities include managing coalition activities, grant development and reporting, and providing technical assistance to regional partnerships. The role focuses on engaging communities in long-term health promotion and assessment initiatives.
Start Date: January 2025
Schedule: Part-time, project-based, with flexible hours
Employment Type: Consultant
Languages: English required; additional languages are a plus
Communications and Marketing Lead
Looking for a creative communications specialist to develop and execute marketing strategies targeting diverse audiences. Responsibilities include crafting and managing content across print, digital, and electronic platforms, as well as supporting outreach events to strengthen organizational impact.
Start Date: January 2025
Schedule: Part-time, project-based, with flexible hours
Employment Type: Consultant
Languages: English required; additional languages are a plus
For more information, please contact info@gaapp.org.
Get Involved
Different chances to get involved during November!
GAAPP World COPD Day 2024
Launched November 10 (World COPD Day is 20 November)
COMING SOON!
GAAPP FIRST World Chronic Cough Day 2024
Deadline to participate EXTENDED until November 8, (#ChornicCoughDay was 15 October)
Our member organization HAP Carabobo, with the support from GAAPP Impact Funds, opened a clinic in Venezuela for the holistic monitoring and rehabilitation of pulmonary hypertension patients following the lack of access to care in the country given its political situation. Hundreds of patients will now have access to care thanks to these efforts and the healthcare professionals that will be donating their time at the clinic.
Reminders
Chronic Cough Awareness Day 2024 Webinar
NOW Available on YouTube
On 15 October 2024 the very first Chronic Cough Awareness Day webinar happened. This groundbreaking event amied to raise awareness about chronic cough, a condition affecting millions worldwide, and the recording is now available here.
Hosted by experts in pulmonology and respiratory health, this webinar explores the latest research, treatment options, and personal stories from individuals living with chronic cough. Whether you’re a healthcare professional, patient, caregiver, or simply interested in learning more, this webinar offers valuable insights and opportunities for discussion.
New Members
National Health Action Force Nepal
Nepal
V-Life savers foundation
Gambia
CDH Norge
Norway
Sociedad Latina De Hipertension Pulmonar
Colombia
We proudly represent 147 organizations in 60 countries from all continents
We advocate for 20Pathologies across all allergy, atopic, and airways diseases
More than 30 papers published and supported more than 30 multi-stakeholder projects
New Clinic for PH in Venezuela
