Spain
7, Riera de la Salut, Sant Feliu de Llobregat, Catalunya, 08980, Spain
Alicia García
Pulmonary Hypertension Spain (HPE) works to promote the health, in a broad sense, of all people diagnosed with Pulmonary Hypertension and their families, to improve their quality of life in all aspects, promote and improve as far as possible their level of care, work, and social life.
Spain
30, Paseo de las Delicias, Madrid, Comunidad de Madrid, 28045, Spain
Shane Fitch, President
The Fundación Lovexair is a non-profit organization that provides care, support and guidance for those with respiratory diseases and their caregivers. The organization aims to do this by sensitizing society about the importance of early diagnosis, prevention and treatment.
Spain
Tudela de Agüeria, Principado de Asturias, 33919, Spain
Armando Ruiz, Global Relationships Manager
The Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FANAER) was established in 2007 by respiratory patients. The non-profit organization aims to improve care and awareness around allergies and respiratory diseases.
Spain
2, Calle Uría, Luarca, Principado de Asturias, 33700, Spain
Ivan Perez, Treasurer
APEPOC provides information on chronic obstructive pulmonary disease (COPD) and defends the rights and improves the quality of life of patients. The organization also provides healthcare services for its associates.
Spain
27, Calle de Orense, Madrid, Comunidad de Madrid, 28020, Spain
Belen Delgado Díez, Vicedirector
AADA (Association of people affected with Atopic Dermatitis) was founded in 2017 and focused on giving trusted information to the patients and making this disease more understandable for the population.
They give voice to the patient community to achieve the recognition and normalization of AD, defending their interests before health policymakers and offering direct support and reliable information to patients and families.
Spain
83, Carrer de Sardenya, Barcelona, Catalunya, 08018, Spain
Jaume Garcia Castro
The Association AAUC was founded 2012 and is a non-profit organization that groups together people affected by chronic urticaria with the aim of improving their quality of life.
Spain
6, Gandasegui Remigio Mons Etxetaldea, Bilbo, Euskadi, 48006, Spain
Irantzu Muerza Santos, President
ASMABI is an Asthma patient organization, that was founded 2019. Its mission is to create awareness for the chronic disease Asthma. ASMABI represents the group of Asthma patients in fighting for the rights for acess to health care, for psychological service, and more.
Spain
2, Calle Linaje, Málaga, Andalucía, 29001, Spain
Maria Victoria Palomares del Moral
ALERMA is a non-profit organization, whose objective is the care, information, and training of allergic and respiratory patients. It is provincial and has about two hundred patients. Our activities revolve around the training of patients, through talks given by professionals: Pulmonologists, Allergists, Psychologists, Physiotherapists, etc. In addition to workshops on inhaler management, management of your disease, and knowledge of your disease. We also celebrate the World Days of diseases that cover the entire respiratory field: Asthma, COPD, Apnea, etc. with an information table in Hospitals and Shopping Centers. On World Asthma Day, we carried out a march along the “Paseo Marítimo” de Málaga, to deepen the idea of the need for exercise for these patients.
Spain
63, Calle de Cronos, Madrid, Comunidad de Madrid, 28037, Spain
Angel Sanchey Sanz, President
AEPNAA is an association that works for people with food and latex allergy and their families. AEPNAA is a non-profit entity and has received in July 2019 the Declaration of Public Utility by the Ministry of Interior of the Government of Spain. The Association has a Board of Directors, democratically elected every two years by a vote of the members of the association. For the development of its functions, AEPNAA has five working groups in charge of the different areas of work: food safety, brands, medicines, and communication and education. AEPNAA also has a Scientific Committee made up of prestigious allergists who advise the association on allergy-related issues.
South Africa
5, Gordon Street, Cape Town, Western Cape, 8001, South Africa
Dr Visva Naidoo (Chairperson)
The non-profit organization seeks to disseminate knowledge about asthma diagnosis and treatment. The programme follows the management guidelines of GINA (Global Initiative for Asthma), SATS (South African Thoracic Society) and ALLSA (Allergy Society of Asthma). NAEP runs a 6-month distance learning asthma educator course for medical professionals and educates the public and medical personnel on all things asthma.
Slovenia
12, Stantetova ulica, Maribor, Upravna enota Maribor, 2000, Slovenia
Tina Mesarič, CEO
Atopika, the non-governmental and non-profit organization, was established to support atopic dermatitis patients. The organization provides information on atopic dermatitis, asthma and allergies. Since 2018, it has been part of the International Alliance of Dermatology Patients Organizations.
Slovenia
95, Mencingerjeva ulica, Ljubljana, Ljubljana, 1000, Slovenia
Špela Novak, President and Founder
The independent, voluntary, and non-profit association provides information on all atopic diseases for patients and their relatives. The organization aims to improve the quality of life for patients through the exchange of knowledge, support groups, events, and working with schools and kindergartens with healthcare facilities. Whatever it takes to help patients and their close ones.
Serbia
Milentija Popovića, Beograd, Grad Beograd, Serbia
Snezana Sundic Vardic, Managing Director
Alergija i ja (National Association for Help and Support for People with Allergies, Celiac Disease and Other Autoimmune Diseases with Restrictions in Diet) provides direct assistance and support to patients, as well as protects their rights. The group organizes lectures, seminars, roundtables, and counseling to educate and support those who require it, as well as publishing educational materials and cooperating with other national and international organizations.
As part of the Hamad Medical Corporation, AIAP aims to raise awareness and understanding about allergy and immunology conditions – updating users on the latest news and scientific advances.
Cross the Goal Foundation Inc. is a non-profit educational organization incorporated under the laws of the Commonwealth of Puerto Rico. It provides academic, preventive, and motivational services to patients with diabetes, adding to its purpose to provide services to patients with atopic dermatitis. Through the television program Cross the Goal Magazine, which airs on Thursdays from 8:00 PM to 8:30 PM, with rebroadcasts on Sundays at 9:30 PM and Tuesdays at 1:00 PM, on Liberty’s Único TV Channel 64, the various topics that pertain to the causes, treatment, and treatment of atopic dermatitis are presented. Causes, treatment, and the correct physical and emotional management by the patient of both diabetes and diabetes of both diabetes and atopic dermatitis. Interviews with patients with these conditions are also presented.
APUrtica was created during the COVID-19 pandemic to help to improve urticaria patients’ quality of life. Even though they still have a small number of members, they are working and actively looking for help and partners to strengthen the association. Since 2021, they have organized virtual events with patients, working on promoting the association focusing on Mental Health issues. They also are actively helping HCPs in the first Portuguese epidemiological study of Urticaria.
Portugal
64, Rua de Arnaldo Gama, Porto, Porto, 4000-192, Portugal
Luís Miguel Vieira de Araujo
Founded in 1995, the Portuguese Asthma Patients Association seeks to raise awareness of asthma as a global public health problem. The association participates in developing programs, controlling harmful substances and improving communication between patients and healthcare professionals.
Poland
Warsaw, Masovian Voivodeship, 03, Poland
Piotr Dabrowiecki, President
Aiming to represent the interests of people with asthma, allergies and COPD, the organization actively engages with World Asthma Day, World COPD Day and World Allergy Week.
Poland
26, Jasna, Zalesie Górne, Mazowieckie, 05-540, Poland
Monika Wyrzykowska
Fundacja Alabaster, it´s a patient advocacy group based in Poland. They provide educational materials, conferences, meetings, a support line, and workshops for adults, childrens, health care professionals and medical and psychology students. They work with asthma, allergy, eczema, food allergy and urticaria.
Their most recent project its the support line Halo! Atopy. They also have programs for young people and for parents of children in the form of regular online meetings with specialists in various fields touching the daily life of a person with skin disease. They also conduct a series of stationary workshops for AD day covering issues relating to the psyche of the chronically ill person.
Peru
162, Calle 20A, San Miguel, Provincia de Lima, 15087, Peru
Maritza Rodríguez, President
Llapan Kallpa is a non-profit organization, whose main objective is to provide comprehensive support to people with this rare disease. We provide psychological and nutritional counseling and offer medical talks with 2 specialists in different pathologies. It is estimated that in Peru there are around 1300 patients with pulmonary hypertension throughout the country, with incidence in the northern regions and in the highlands and mountains of Peru.
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