South Africa
5, Gordon Street, Cape Town, Western Cape, 8001, South Africa
Dr Visva Naidoo (Chairperson)
The non-profit organization seeks to disseminate knowledge about asthma diagnosis and treatment. The programme follows the management guidelines of GINA (Global Initiative for Asthma), SATS (South African Thoracic Society) and ALLSA (Allergy Society of Asthma). NAEP runs a 6-month distance learning asthma educator course for medical professionals and educates the public and medical personnel on all things asthma.
Slovenia
12, Stantetova ulica, Maribor, Upravna enota Maribor, 2000, Slovenia
Tina Mesarič, CEO
Atopika, the non-governmental and non-profit organization, was established to support atopic dermatitis patients. The organization provides information on atopic dermatitis, asthma and allergies. Since 2018, it has been part of the International Alliance of Dermatology Patients Organizations.
Slovenia
95, Mencingerjeva ulica, Ljubljana, Ljubljana, 1000, Slovenia
Špela Novak, President and Founder
The independent, voluntary, and non-profit association provides information on all atopic diseases for patients and their relatives. The organization aims to improve the quality of life for patients through the exchange of knowledge, support groups, events, and working with schools and kindergartens with healthcare facilities. Whatever it takes to help patients and their close ones.
Serbia
Milentija Popovića, Beograd, Grad Beograd, Serbia
Snezana Sundic Vardic, Managing Director
Alergija i ja (National Association for Help and Support for People with Allergies, Celiac Disease and Other Autoimmune Diseases with Restrictions in Diet) provides direct assistance and support to patients, as well as protects their rights. The group organizes lectures, seminars, roundtables, and counseling to educate and support those who require it, as well as publishing educational materials and cooperating with other national and international organizations.
As part of the Hamad Medical Corporation, AIAP aims to raise awareness and understanding about allergy and immunology conditions – updating users on the latest news and scientific advances.
Cross the Goal Foundation Inc. is a non-profit educational organization incorporated under the laws of the Commonwealth of Puerto Rico. It provides academic, preventive, and motivational services to patients with diabetes, adding to its purpose to provide services to patients with atopic dermatitis. Through the television program Cross the Goal Magazine, which airs on Thursdays from 8:00 PM to 8:30 PM, with rebroadcasts on Sundays at 9:30 PM and Tuesdays at 1:00 PM, on Liberty’s Único TV Channel 64, the various topics that pertain to the causes, treatment, and treatment of atopic dermatitis are presented. Causes, treatment, and the correct physical and emotional management by the patient of both diabetes and diabetes of both diabetes and atopic dermatitis. Interviews with patients with these conditions are also presented.
APUrtica was created during the COVID-19 pandemic to help to improve urticaria patients’ quality of life. Even though they still have a small number of members, they are working and actively looking for help and partners to strengthen the association. Since 2021, they have organized virtual events with patients, working on promoting the association focusing on Mental Health issues. They also are actively helping HCPs in the first Portuguese epidemiological study of Urticaria.
Portugal
64, Rua de Arnaldo Gama, Porto, Porto, 4000-192, Portugal
Luís Miguel Vieira de Araujo
Founded in 1995, the Portuguese Asthma Patients Association seeks to raise awareness of asthma as a global public health problem. The association participates in developing programs, controlling harmful substances and improving communication between patients and healthcare professionals.
Poland
Warsaw, Masovian Voivodeship, 03, Poland
Piotr Dabrowiecki, President
Aiming to represent the interests of people with asthma, allergies and COPD, the organization actively engages with World Asthma Day, World COPD Day and World Allergy Week.
Poland
26, Jasna, Zalesie Górne, Mazowieckie, 05-540, Poland
Monika Wyrzykowska
Fundacja Alabaster, it´s a patient advocacy group based in Poland. They provide educational materials, conferences, meetings, a support line, and workshops for adults, childrens, health care professionals and medical and psychology students. They work with asthma, allergy, eczema, food allergy and urticaria.
Their most recent project its the support line Halo! Atopy. They also have programs for young people and for parents of children in the form of regular online meetings with specialists in various fields touching the daily life of a person with skin disease. They also conduct a series of stationary workshops for AD day covering issues relating to the psyche of the chronically ill person.
Peru
162, Calle 20A, San Miguel, Provincia de Lima, 15087, Peru
Maritza Rodríguez, President
Llapan Kallpa is a non-profit organization, whose main objective is to provide comprehensive support to people with this rare disease. We provide psychological and nutritional counseling and offer medical talks with 2 specialists in different pathologies. It is estimated that in Peru there are around 1300 patients with pulmonary hypertension throughout the country, with incidence in the northern regions and in the highlands and mountains of Peru.
The Panama Foundation of Pulmonary Hypertension was founded in 2016 as a non-profit foundation supporting the patient’s from the social and policymaking perspective. Thus, improving the life expectancy of the patients. The FPHP worked to modify its legal entity to be able to work as a Panamanian foundation of SARE (Respiratory diseases) to support patients with any respiratory disease.
APAD (Asociación Panameña de Asma y Deportes) provides patients with care and awareness through good medical control and the practice of physical activity and sports, for better management of their asthma. They have a project on physical activities and sports in the community with children from 6 to 14 years old, where we teach them to breathe properly and also to practice regular physical activity, all activities are supervised by a doctor They also conduct virtual projects with talks and physical exercises to keep them active from home.
Helping Hands Foundation is a non-governmental organization that supports low-income and orphan families by delivering monthly food packages to their doorstep.
Norway
Sankt Olavs Plass, Oslo, Oslo, 0165, Norway
Anne Elisabeth Eriksrud, Secretary General
Founded in 1960, NAAF seeks to slow down the increasing development of asthma, allergies and hypersensitivity diseases. The 1,400-member organization also wants to improve the quality of life of those with the conditions.
Nigeria
426, Magnus Abe Street, Ankuru, Federal Capital Territory, 900108, Nigeria
Kelechi Nwangoro, Director Operation/Programme
Asthma Relief Campaign Project (ASMARCAP) is an Independent Nigerian charity organization (charity no 12970) working to conquer asthma in the country and create adequate awareness of the disorder in partnership with people with asthma, and all who share their concern, through a combination of education, information, communication, support, research, and advocacy. Some projects include the “SCHOOL ASTHMA AWARENESS CAMPAIGN (SAAC),” an initiative with the youth in our schools, or the “EDUCATE SOCIETY & COMMUNITY ON ASTHMA & PREVENTION (ESCAP),” a program with the larger society as target (local Government, Towns, Cities, Villages and Rural Communities).
Nigeria
51, Nza Street, Enugu, Enugu, 400102, Nigeria
Chiwuike Uba, Executive Director
ACUF is a non-profit, non-governmental and charitable organization that was established in 2016. Through research, education, networking and advocacy, ACUF aims to improve the lives of those with asthma and allergic diseases.
Mexico
Avenida Francisco I. Madero, Monterrey, Nuevo León, Mexico
Sandra Nora González Díaz, Director
The Clinic for Rehabilitation and Education in Asthma and Allergy (CREAA) is part of the Regional Center for Allergy and Clinical Immunology (CRAIC), located at the Facultad de Medicina y Hospital Universitario.
Mexico
779, Avenida Revolución, Ciudad de México, Ciudad de México, 03700, Mexico
Guadalupe Campoy Ruy Sánchez, General Director
Founded in 1982, its mission is to expand and improve the diagnosis of cystic fibrosis by advocating public policies for the application of expanded neonatal screening and bringing diagnostic centers to places where they do not exist, even when they have the haospital infrastructure to do so. They also work to promote the creation of care centers in places whee the diagnosis has been carried out, providing patients with access to forms of control and specialized treatment of the disease, improving their quality of life and life expectancy.
In education, they work to disseminate and increase knowledge about CF among parents, patients, physicians, health personnel, and the general public.
The non-profit organization aims to promote awareness, advocacy and education on allergies, asthma, COPD and other respiratory related conditions.
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