The Panama Foundation of Pulmonary Hypertension was founded in 2016 as a non-profit foundation supporting the patient’s from the social and policymaking perspective. Thus, improving the life expectancy of the patients. The FPHP worked to modify its legal entity to be able to work as a Panamanian foundation of SARE (Respiratory diseases) to support patients with any respiratory disease.
APAD (Asociación Panameña de Asma y Deportes) provides patients with care and awareness through good medical control and the practice of physical activity and sports, for better management of their asthma. They have a project on physical activities and sports in the community with children from 6 to 14 years old, where we teach them to breathe properly and also to practice regular physical activity, all activities are supervised by a doctor They also conduct virtual projects with talks and physical exercises to keep them active from home.
Helping Hands Foundation is a non-governmental organization that supports low-income and orphan families by delivering monthly food packages to their doorstep.
Norway
Sankt Olavs Plass, Oslo, Oslo, 0165, Norway
Anne Elisabeth Eriksrud, Secretary General
Founded in 1960, NAAF seeks to slow down the increasing development of asthma, allergies and hypersensitivity diseases. The 1,400-member organization also wants to improve the quality of life of those with the conditions.
Nigeria
426, Magnus Abe Street, Ankuru, Federal Capital Territory, 900108, Nigeria
Kelechi Nwangoro, Director Operation/Programme
Asthma Relief Campaign Project (ASMARCAP) is an Independent Nigerian charity organization (charity no 12970) working to conquer asthma in the country and create adequate awareness of the disorder in partnership with people with asthma, and all who share their concern, through a combination of education, information, communication, support, research, and advocacy. Some projects include the “SCHOOL ASTHMA AWARENESS CAMPAIGN (SAAC),” an initiative with the youth in our schools, or the “EDUCATE SOCIETY & COMMUNITY ON ASTHMA & PREVENTION (ESCAP),” a program with the larger society as target (local Government, Towns, Cities, Villages and Rural Communities).
Nigeria
51, Nza Street, Enugu, Enugu, 400102, Nigeria
Chiwuike Uba, Executive Director
ACUF is a non-profit, non-governmental and charitable organization that was established in 2016. Through research, education, networking and advocacy, ACUF aims to improve the lives of those with asthma and allergic diseases.
Mexico
Avenida Francisco I. Madero, Monterrey, Nuevo León, Mexico
Sandra Nora González Díaz, Director
The Clinic for Rehabilitation and Education in Asthma and Allergy (CREAA) is part of the Regional Center for Allergy and Clinical Immunology (CRAIC), located at the Facultad de Medicina y Hospital Universitario.
Mexico
779, Avenida Revolución, Ciudad de México, Ciudad de México, 03700, Mexico
Guadalupe Campoy Ruy Sánchez, General Director
Founded in 1982, its mission is to expand and improve the diagnosis of cystic fibrosis by advocating public policies for the application of expanded neonatal screening and bringing diagnostic centers to places where they do not exist, even when they have the haospital infrastructure to do so. They also work to promote the creation of care centers in places whee the diagnosis has been carried out, providing patients with access to forms of control and specialized treatment of the disease, improving their quality of life and life expectancy.
In education, they work to disseminate and increase knowledge about CF among parents, patients, physicians, health personnel, and the general public.
The non-profit organization aims to promote awareness, advocacy and education on allergies, asthma, COPD and other respiratory related conditions.
The Food Allergy Network serves as a community for those affected by food allergies to learn, share, support and raise awareness. The group includes parents of patients and nutritionists, enabling them to exchange tips on how best to support children with food allergies.
Founded in 1994 by patients with respiratory diseases, J-Breath disseminates information regarding respiratory conditions and promotes patient support, aiming to sustain a high quality of life for all.
Italy
45a, Piazza A. de Gasperi, Padova, Veneto, 35131, Italy
Marcia Podestà, President
Founded in 2002, Food Allergy Italia aims to protect the health of people suffering from food allergies and intolerances. The non-profit association is formed of patients, adults and parents of children with allergies, and seeks to increase social sensitivity and create inclusive communities.
Italy
94, Via Niccolò Tommaseo, Padova, Veneto, 35131, Italy
Ms Francesca Pirovano, Foreign Relations Liaisons
Associazione Respiriamo Insieme Onlus joined the European Lung Foundation (ELF) in 2017, three years after it was founded. The organisation offers education on respiratory diseases to patients and parents of patients, as well as promoting further awareness, diagnosis and treatment of breathing disorders of adults and children.
Ireland
42-43, Amiens Street, Dublin 1, County Dublin, D01 E4X5, Ireland
Sarah O’Connor, CEO
Aiming to transform the lives of the 380,000 people in Ireland with asthma, Asthma Society of Ireland offers education and support to those with asthma and their family and caregivers.
EMPOWER is a registered Civil Society Organization working in grassroots communities for the past 31 years. Accredited to UNEP & UNCCD and received the best consumer VCO award from Govt of Tamil Nadu, India. EMPOWER has special status with the UN ECOSOC. They launched the Global Asthma Community Forum, 50th World Conference on Lung Health – An Initiative of Empower -Member of the Union. EMPOWER is registered and authorized by the Government of India.
Allergy Care is made up of patients with allergies and food intolerances, and their families. The organisation aims to encourage and promote research on allergies while fostering the exchange of information between patients.
Iceland
Reykjavík, Reykjavíkurborg, 108, Iceland
Aldis Jonsdottir, Chairman
SLS was established by lung patients and stakeholders in lung welfare and prevention in 1997. Since then, the organisation has worked in the best interests of lung patients and their care. SLS launched their website in 2003 to create more access to information on lung conditions for the general public and regularly hold educational meetings on lung diseases.
Greece
75, Eleftheriou Venizelou, Cholargos, Vorios Tomeas Athinon, 155 61, Greece
302107726160
Marianella Salapatas, Founder
Anixi is a non-profit organization aimed at combating allergies and asthma through information, education, social presence by organizing workshops, seminars, discussions in collaboration with scientific companies and relevant NGOs in Greece and abroad.
Germany
3, Saurbornstraße, Koblenz, Rheinland-Pfalz, 56073, Germany
Sabine Bauer, Chair
Association founded by patients to give other urticaria patients a first point of contact for their disease. All information we can gather is made available free of charge to any patient and is always updated. Urtikaria-Helden e.V. was founded by one of the largest hives groups on Facebook.
The Permian Health Lung Institute is a leading advocacy and research center for lung health that are dedicated to empowering the community through education, research, and providing the highest quality of care to patients suffering from various respiratory illnesses. The Institute actively engages in lung health initiatives and awareness campaigns in The Gambia. The Clean Air Initiative is an innovative, multidisciplinary effort by the Permian Health Lung Institute to promote lung health locally by filling the air quality knowledge and evidence gap in The Gambia.
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