Gambia
Serrekunda, Kanifing Municipal Council, The Gambia
Joseph Idigba Awuru
The charitable, non-governmental organization was set up in 2004 to help sufferers of human rights victims of poverty, diseases, natural disaster, starvation, alleviating pains. Based in The Gambia, the organization helps those in Nigeria and Sierra Leone.
The French Federation of Associations and Friends of Patients, Insufficient of Disabled Respiratory (FFAAIR) launched in 2007 and is made up of 65 regional or departmental associations. As an association of patients, it seeks to defend patients’ rights when recognizing respiratory diseases.
France
9, Rue de Vanves, Boulogne-Billancourt, Île-de-France, 92100, France
Christine Rolland, Director
Established in 1991, the non-profit association seeks to support those with asthma or allergies, their parents and medical professionals working in the field. The French Asthma and Allergies association is a member of the European Federation of Airways Diseases Patients’ Associations (EFA) and has received the gold medal from the National Academy of Medicine.
Finland
19, Paciuksenkatu, Helsinki, Uusimaa, 00270, Finland
Paula Hellemaa, Director
Focusing on allergies, asthma and skin diseases, the Finnish Allergy and Asthma Federation offers counselling, professional training and peer support, as well as conducting research and releasing publications in the field.
Aiming to disseminate information about asthma and allergies for the benefit of both patients and medical professionals, the Asthma and Allergies Patient Association of Ethiopia (ETH) is based in the capital, Addis Ababa.
El Salvador
San José Villanueva, La Libertad Department, El Salvador
50372100202
Evelyn Roxana Azucena de Aguirre, President
Non-profit association of patients for patients, working to improve the quality of life of people with Psoriasis, Psoriatic Arthritis and skin diseases including Atopic Dermatitis, focusing on education and improving care and access to therapies and medications, as well as providing accompaniment to our members. They work in advocacy with health authorities. They have a working alliance with the Ministry of Health of our country.
Czech Republic
2, Budínova, Hlavní město Praha, 180 00, Czechia
Dr. Stanislav Kos, PhD., FCCP, President
The Czech Civic Association against Lung Diseases (ČOPN) supports the Czech Civic Association against Chronic Obstructive Pulmonary Diseases. The organisation’s members are made up of both patients and experts, as the group seeks to facilitate knowledge sharing about lung diseases between them.
Czech Republic
31, Sokolská, Hlavní město Praha, 120 00, Czechia
Dr. Stanislav Kos, PhD., FCCP, President
The Czech Initiative for Asthma seeks to increase awareness of bronchial asthma. Based in Prague, the organisation aims to improve asthma diagnosis at a younger age and effectively and safely treat it in order to prevent irreversible changes. The Czech Initiative for Asthma also focuses on the economic impact of asthma, trying to make medical support accessible for all.
Croatia
100, Srebrnjak, Zagreb, Grad Zagreb, 10000, Croatia
Marina Jakirović, Secretary
The mission statement of the Asthma Parent Support Group is to promote knowledge on asthma and other allergic and chronic pulmonary diseases and to achieve better compliance of patients and their parents, as well as to help our patients with their specific needs, thus contributing to the well-being of the whole society. They organize meetings devoted to increasing the knowledge of asthma and asthma therapy. The active approach of parents is encouraged via support groups to help solve some of the complex issues associated with asthma treatment, especially in treating children with biological drugs.
Colombia
20-42, Calle 12, Cali, Valle del Cauca, 760042, Colombia
Guillermo Gutierrez
Fundapso is a non-profit foundation formed by a group of patients diagnosed with skin diseases and professionals from different areas interested in working to provide psychological, occupational, and social support to the patients. and professionals from different regions, interested in working to provide psychological, occupational, and social support to people affected by psoriasis, psoriatic arthritis and other skin diseases in Colombia.
Its mission is to generate a change in patients’ quality of life through education and support to patients and their families to achieve a better quality of life.
Fundación Ayúdanos a Respirar is a non-profit organization created by patients working on behalf of patients and their families, dedicated to raising awareness, educating, raising visibility, influencing public policy, and advocating for the rights of patients with pulmonary hypertension and chronic and rare cardiorespiratory diseases. They offer accompaniment with individualized mentoring, support groups, educational lectures on the disease, and how to navigate the health system. From altruism, they support social causes and currently implement educational programs for the patient and caregiver. They promote research and development.
Colombia
93-34, Carrera 47, Bogotá, Cundinamarca, 111211, Colombia
Martha Herrera, Legal Representative
FIQUIRES helps Colombian patients with lungs diseases to cover all their needs.
Their mission is to provide the best support to Colombian Respiratory patients with integrity, efficiency, and quality. They participate and plan many activities like social work, support groups, training, comprehensive specialist services, patient support, public health surveillance, work with governing bodies, economic evaluation in health and community pharmacovigilance.
The Childhood Asthma and Allergy Patient Platform (CAAPP) have been responsible for hosting numerous events and activities, from communication and sports days to Asthma Day – in which it encourages those with asthma to control their condition.
Chile
Puente Alto, Santiago Metropolitan Region, 8150000, Chile
Teresa Muller Fernandez
The Chilean Association of Pulmonary Hypertension directs its work to influence public policies and promote practices aimed at improving the quality of life of those living with pulmonary hypertension through development, knowledge generation, education, and citizen participation, safeguarding the dignity and autonomy of patients from the 2 phases of prevention, diagnosis and treatment.
Their goal’s a humanized and sustainable health system where all patients have access to and timely diagnosis. They work at the national level.
Canadian Chronic Urticaria Society (CCUS) is a non-profit organization. Its mission is to help improve patients’ health and quality of life who have to deal with chronic urticaria. Operations to bring their mission to life began in August 2019 with the organization of an educational day on chronic urticaria in Quebec City. In 2020, CCUS made a digital shift by giving itself a website with spaces dedicated to members. In2021, they obtained a federal charter and became an affiliate member of the Canadian Skin Patients Alliance (CSPA).
Canada
124, Merton Street, Toronto, Ontario, M4S 2Z2, Canada
Jeffrey Beach, President & CEO
Asthma Canada is the only national charity solely devoted to improving the lives of Canadians living with asthma and respiratory allergies. Asthma Canada’s mission is to help Canadians with asthma lead healthy lives through education, advocacy and research. Empowering patients with evidence-based information, education and support programs, our vision is a future without asthma.
ABBA is a voluntary civic association of people suffering from allergic and chronic lung diseases, founded in 2002. In our work so far we have sought to support our members and all patients, as one of the most important tasks of the association is to inform them about modern methods of prevention, diagnosis and treatment and improve their quality of life.
Brazil
1882, Rua 15 de Novembro, Rio Grande do Sul, 97500-510, Brazil
555599797788
Marilyn Urrutia Pereira, President
The Children’s Asthma Prevention Program was formed in Uruguaiana, Brazil in 2012. Coordinated by Dr. Marilyn Urrutia Pereira, the organisation specializes in paediatric care for children with asthma and associated health concerns.
Brazil
198, Rua Francisco Rocha, Paraná, 80420-130, Brazil
Veronica Stasiak, Executive Director & Gabriel Johnson Projects and Institutional Relations Coordinator
Founded in 2011, headquartered in Curitiba/PR, and operating nationwide, Unidos pela Vida – Brazilian Institute for the Care of Cystic Fibrosis, is a non-profit civil society organization whose mission is to advocate for people with cystic fibrosis in Brazil to have knowledge about their health and rights, equity of access to early diagnosis and the best treatments, contributing to improved quality of life. It was on the list of the 10 best small NGOs in the country in 2020 and 2021. In 2018 and 2019, it was recognized as the best small NGO in Brazil among the 100 best NGOs in the country and also received the Grand Prix Award, as the best Third Sector practice of Paraná, by the GRPCOM Institute, in 2019.
Brazil
1058, Avenida Emílio Ribas, São Paulo, 07022, Brazil
Gustavo San Martin
The Chronicles of Day-to-Day association was established to combat the struggles of living with chronic diseases. The organisation aims to spread information on a range of chronic conditions through the internet to reach the most diverse people.
Do you want to update any information from your organization on this page? Contact us