Fundapso is a non-profit foundation formed by a group of patients diagnosed with skin diseases and professionals from different areas interested in working to provide psychological, occupational, and social support to the patients. and professionals from different regions, interested in working to provide psychological, occupational, and social support to people affected by psoriasis, psoriatic arthritis and other skin diseases in Colombia.

Its mission is to generate a change in patients’ quality of life through education and support to patients and their families to achieve a better quality of life.

• Facebook: https://www.facebook.com/FundapsoColombia
• Instagram: https://www.instagram.com/fundapso/
• YouTube: Fundapso Colombia
• LinkedIn: https://co.linkedin.com/in/fundapso-colombia-0793b68b

Fundación Ayúdanos a Respirar is a non-profit organization created by patients working on behalf of patients and their families, dedicated to raising awareness, educating, raising visibility, influencing public policy, and advocating for the rights of patients with pulmonary hypertension and chronic and rare cardiorespiratory diseases. They offer accompaniment with individualized mentoring, support groups, educational lectures on the disease, and how to navigate the health system. From altruism, they support social causes and currently implement educational programs for the patient and caregiver. They promote research and development.

• Facebook: https://www.facebook.com/HipertensionPulmonarCol
• Instagram: https://www.instagram.com/ayudanosarespirar/
• Twitter: https://twitter.com/ayudaarespirar
• Youtube:  Ayúdanos a respirar

FIQUIRES helps Colombian patients with lungs diseases to cover all their needs.
Their mission is to provide the best support to Colombian Respiratory patients with integrity, efficiency, and quality. They participate and plan many activities like social work, support groups, training, comprehensive specialist services, patient support, public health surveillance, work with governing bodies, economic evaluation in health and community pharmacovigilance.

• Facebook: https://www.facebook.com/FIQUIRES
• Instagram: https://www.instagram.com/fiquires/
• Twitter: https://twitter.com/fiquires

The Childhood Asthma and Allergy Patient Platform (CAAPP) have been responsible for hosting numerous events and activities, from communication and sports days to Asthma Day – in which it encourages those with asthma to control their condition.

The Chilean Association of Pulmonary Hypertension directs its work to influence public policies and promote practices aimed at improving the quality of life of those living with pulmonary hypertension through development, knowledge generation, education, and citizen participation, safeguarding the dignity and autonomy of patients from the 2 phases of prevention, diagnosis and treatment.

Their goal’s a humanized and sustainable health system where all patients have access to and timely diagnosis. They work at the national level.

• Facebook: https://www.facebook.com/hipertensionpulmonarchile/
• Instagram: https://www.instagram.com/hapchi_oficial/
• Twitter: https://twitter.com/HAPCHI_CHILE

Canadian Chronic Urticaria Society (CCUS) is a non-profit organization. Its mission is to help improve patients’ health and quality of life who have to deal with chronic urticaria. Operations to bring their mission to life began in August 2019 with the organization of an educational day on chronic urticaria in Quebec City. In 2020, CCUS made a digital shift by giving itself a website with spaces dedicated to members. In2021, they obtained a federal charter and became an affiliate member of the Canadian Skin Patients Alliance (CSPA).

• Facebook: https://www.facebook.com/chroniqueurticaire

Asthma Canada is the only national charity solely devoted to improving the lives of Canadians living with asthma and respiratory allergies. Asthma Canada’s mission is to help Canadians with asthma lead healthy lives through education, advocacy and research. Empowering patients with evidence-based information, education and support programs, our vision is a future without asthma.

• Facebook: https://www.facebook.com/AsthmaCanada
• Twitter: https://twitter.com/AsthmaCanada

ABBA is a voluntary civic association of people suffering from allergic and chronic lung diseases, founded in 2002. In our work so far we have sought to support our members and all patients, as one of the most important tasks of the association is to inform them about modern methods of prevention, diagnosis and treatment and improve their quality of life.

• Facebook: https://www.facebook.com/AbbaAsociaciaNaBulgariteBoleduvasiOtAstma/

The Children’s Asthma Prevention Program was formed in Uruguaiana, Brazil in 2012. Coordinated by Dr. Marilyn Urrutia Pereira, the organisation specializes in paediatric care for children with asthma and associated health concerns.

• Facebook: https://www.facebook.com/pipaprogramainfantildeasma/

Founded in 2011, headquartered in Curitiba/PR, and operating nationwide, Unidos pela Vida – Brazilian Institute for the Care of Cystic Fibrosis, is a non-profit civil society organization whose mission is to advocate for people with cystic fibrosis in Brazil to have knowledge about their health and rights, equity of access to early diagnosis and the best treatments, contributing to improved quality of life. It was on the list of the 10 best small NGOs in the country in 2020 and 2021. In 2018 and 2019, it was recognized as the best small NGO in Brazil among the 100 best NGOs in the country and also received the Grand Prix Award, as the best Third Sector practice of Paraná, by the GRPCOM Institute, in 2019.

• Facebook: https://fb.com/unidospelavida
• Instagram: https://www.instagram.com/institutounidospelavida/
• Twitter: https://twitter.com/unidospelavida
• Tiktok: https://www.tiktok.com/@unidospelavida
• Spotify: https://open.spotify.com/show/1RKDgocjKQluEarWlvBAvC
• YouTube: Instituto Unidos pela Vida – Fibrose Cística
• LinkedIn: https://www.linkedin.com/company/unidospelavida/

The Chronicles of Day-to-Day association was established to combat the struggles of living with chronic diseases. The organisation aims to spread information on a range of chronic conditions through the internet to reach the most diverse people.

• Facebook: https://www.facebook.com/cddcronicos/
• Twitter: https://twitter.com/cddcronicos

ABRAF assists the community living with pulmonary hypertension, heart failure, pulmonary fibrosis, severe asthma, chronic obstructive pulmonary disease, and alpha-1. Since 2006, ABRAF is a registered association in Brazil.

Its mission is to improve patients’ quality of life, support them and their families, raise awareness of their disease, collaborate with healthcare providers, and advocate for public policies on adequate, accessible treatment.

Based in São Paulo, ABRAF also reaches Latin-American and Portuguese-speaking countries. In ABRAF’s support groups, helpline, or educational conferences, families receive information on access to social security, treatment, and clinical trials. Local communities also benefit from the institution’s research, awareness campaigns, and advocacy at federal, state, and local levels.

• Facebook: https://www.facebook.com/hipertensaopulmonar
• Instagram: https://www.instagram.com/hipertensaopulmonar/
• YouTube: ABRAF -Hipertensão Pulmonar e Doenças Correlatas

Founded in Rio de Janeiro in 1992, The Brazilian Society of Asthmatics aims to connect doctors and other medical professionals to assist asthmatics through knowledge sharing. ABRA then disseminates the acquired information to patients and the general population.

• Facebook: https://www.facebook.com/www.abrasaopaulo.org/

The Organisation for Patients with Allergies, Asthma and Atopic Dermatitis (AAA), a not-for-profit organization is the only patient organization for people with atopic diseases in Bosnia and Herzegovina, with a unique online community of more than 10.000 patients.

• Facebook: https://www.facebook.com/groups/alergije.astma.atopijski.dermatitis

The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is responsible for connecting 39 allergy, asthma and chronic obstructive pulmonary disease (COPD) patients’ associations across 24 countries. The independent non-profit organization is patient-led and advocates on a European-level for the needs of those with allergies, asthma and COPD from its head office in Brussels, Belgium.

• Facebook: https://www.facebook.com/EFAPatients
• Twitter: https://twitter.com/EFA_Patients

The Austrian Lung Union (ÖLU), founded 1985, is a nationwide active self-help group for people with respiratory diseases (Asthma, COPD, CF, Lung Cancer), skin diseases (Neurodermatitis, Urticaria) and allergies. The ÖLU supports and promotes the maturity of those affected. The goal: Informed patients and an informed society.

Use the offers of the Austrian Lung Union and help to raise public awareness regarding the importance of allergies, respiratory diseases and atopic diseases. We give and convey guidance for self-help. In doing so, we strive for partnership awareness: The physician as a partner in the life of the patient, but also the patient as a partner in the physician’s efforts.

• Facebook: https://www.facebook.com/lungenunion/

COPD Austria is a Support group for COPD and long-term oxygen therapy. They Provide help in dealing with the diagnosis of COPD, support people with COPD, and provide long-term oxygen in all phases of life. They also work to improve the quality of life of those affected and their relatives, promote the exchange of experiences and help to gain distance from the disease in casual conversations. COPD Austria encourages those affected to take part in outdoor activities (Nordic walking, visits to motor parks, walks, etc.) to maintain and promote the desire for physical activities, as well as to remain mobile or to become mobile again, to maintain social contacts, fun and joie de vivre at group meetings of affected persons and relatives. They also provide education about COPD and new developments in medical treatment to reduce existing inhibitions, counter stigmatization, and organize lectures on the subject.

• Facebook: https://www.facebook.com/groups/copdaustria

The National Asthma Council Australia aims to facilitate best-practice care for those with both asthma and allergies. The organisation has developed evidence-based asthma guidelines, practice tools and resources, as well as creating an education program, which provides the public with information on asthma and allergy management.

• Facebook: https://www.facebook.com/nationalasthmacouncil/
• Twitter: https://twitter.com/asthmacouncilau

The Eczema Association of Australasia Inc (EAA) is a national charity not-for-profit organization founded in January 1994 that supports and educates Eczema sufferers and carers, along with the wider community, in all aspects of Eczema and its impact.

The EAA’s free number 1300 300 182 provides a ‘friendly supportive ear’ to sufferers who often don’t know where to turn for help and advice. The EAA also aims to increase public awareness of Eczema, improve treatment of sufferers and carers in public situations, improve and broaden the availability of medical treatments and supplies for Eczema sufferers, and maintain links with Medical Professionals for the latest information and facilitate Specialised Research.

• Facebook: https://www.facebook.com/eczemaau
• Instagram: https://www.instagram.com/eczemaau
• Twitter: https://twitter.com/EczemaAu
• Youtube: Eczema Association
• LinkedIn: https://www.linkedin.com/in/michelle-privitera-546067151/
• TikTok: https://www.tiktok.com/@eczemaau

ausEE Inc. is Australia’s peak national support and patient advocacy organization representing Australians living with an Eosinophilic Gastrointestinal Disorder (EGID) including Eosinophilic Oesophagitis (EoE). Their mission is to improve the lives of those affected by EGIDs by providing support, evidence-based information, resources, and campaigning to raise awareness and funds for further research in Australia. ausEE Inc. provides support networks online, and in-person. They also attend medical conferences to raise awareness to the medical community and host the National EOS Awareness Week and Feeding Tube Awareness Week yearly. They also support the allergy community through social media and issue grants for medical research projects into EGID.

• Facebook: https://www.facebook.com/auseeinc
• Instagram: https://www.instagram.com/ausee_inc
• Twitter: https://www.twitter.com/auseeorg
• Youtube: ausEE Inc.