Brazil
445, Rua Doutor Virgílio de Carvalho Pinto, São Paulo, 05415-030, Brazil
Flavia Lima
ABRAF assists the community living with pulmonary hypertension, heart failure, pulmonary fibrosis, severe asthma, chronic obstructive pulmonary disease, and alpha-1. Since 2006, ABRAF is a registered association in Brazil.
Its mission is to improve patients’ quality of life, support them and their families, raise awareness of their disease, collaborate with healthcare providers, and advocate for public policies on adequate, accessible treatment.
Based in São Paulo, ABRAF also reaches Latin-American and Portuguese-speaking countries. In ABRAF’s support groups, helpline, or educational conferences, families receive information on access to social security, treatment, and clinical trials. Local communities also benefit from the institution’s research, awareness campaigns, and advocacy at federal, state, and local levels.
Brazil
620, Alameda Iraé, São Paulo, 04075-000, Brazil
Ms Zuleid D. L. Mattar – Mrs José Roberto Jardim
Founded in Rio de Janeiro in 1992, The Brazilian Society of Asthmatics aims to connect doctors and other medical professionals to assist asthmatics through knowledge sharing. ABRA then disseminates the acquired information to patients and the general population.
Bosnia-Herzegovina
59, Trg oteškog bataljona, Ilidža, Federacija Bosne i Hercegovine, Bosnia and Herzegovina
Vildana Mujkic, President
The Organisation for Patients with Allergies, Asthma and Atopic Dermatitis (AAA), a not-for-profit organization is the only patient organization for people with atopic diseases in Bosnia and Herzegovina, with a unique online community of more than 10.000 patients.
Belgium
35, Rue du Congrès, Bruxelles, Bruxelles, 1000, Belgium
Susanna Palkonen, Director
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is responsible for connecting 39 allergy, asthma and chronic obstructive pulmonary disease (COPD) patients’ associations across 24 countries. The independent non-profit organization is patient-led and advocates on a European-level for the needs of those with allergies, asthma and COPD from its head office in Brussels, Belgium.
Austria
26, Obere Augartenstraße, Wien, Wien, 1020, Austria
Gundula Koblmiller, MSc; Thomas Stodulka (Board members)
The Austrian Lung Union (ÖLU), founded 1985, is a nationwide active self-help group for people with respiratory diseases (Asthma, COPD, CF, Lung Cancer), skin diseases (Neurodermatitis, Urticaria) and allergies. The ÖLU supports and promotes the maturity of those affected. The goal: Informed patients and an informed society.
Use the offers of the Austrian Lung Union and help to raise public awareness regarding the importance of allergies, respiratory diseases and atopic diseases. We give and convey guidance for self-help. In doing so, we strive for partnership awareness: The physician as a partner in the life of the patient, but also the patient as a partner in the physician’s efforts.
Austria
45, Dorfstraße, Graz, Steiermark, 8041, Austria
Judith & Georg illek, Chairwoman & deputy chairwoman
COPD Austria is a Support group for COPD and long-term oxygen therapy. They Provide help in dealing with the diagnosis of COPD, support people with COPD, and provide long-term oxygen in all phases of life. They also work to improve the quality of life of those affected and their relatives, promote the exchange of experiences and help to gain distance from the disease in casual conversations. COPD Austria encourages those affected to take part in outdoor activities (Nordic walking, visits to motor parks, walks, etc.) to maintain and promote the desire for physical activities, as well as to remain mobile or to become mobile again, to maintain social contacts, fun and joie de vivre at group meetings of affected persons and relatives. They also provide education about COPD and new developments in medical treatment to reduce existing inhibitions, counter stigmatization, and organize lectures on the subject.
Australia
153-161, Park Street, South Melbourne, Victoria, 3205, Australia
Ms Rhonda Cleveland , CEO
The National Asthma Council Australia aims to facilitate best-practice care for those with both asthma and allergies. The organisation has developed evidence-based asthma guidelines, practice tools and resources, as well as creating an education program, which provides the public with information on asthma and allergy management.
The Eczema Association of Australasia Inc (EAA) is a national charity not-for-profit organization founded in January 1994 that supports and educates Eczema sufferers and carers, along with the wider community, in all aspects of Eczema and its impact.
The EAA’s free number 1300 300 182 provides a ‘friendly supportive ear’ to sufferers who often don’t know where to turn for help and advice. The EAA also aims to increase public awareness of Eczema, improve treatment of sufferers and carers in public situations, improve and broaden the availability of medical treatments and supplies for Eczema sufferers, and maintain links with Medical Professionals for the latest information and facilitate Specialised Research.
Australia
Pacific Paradise, Queensland, 4564, Australia
Sarah Gray, Founder
ausEE Inc. is Australia’s peak national support and patient advocacy organization representing Australians living with an Eosinophilic Gastrointestinal Disorder (EGID) including Eosinophilic Oesophagitis (EoE). Their mission is to improve the lives of those affected by EGIDs by providing support, evidence-based information, resources, and campaigning to raise awareness and funds for further research in Australia. ausEE Inc. provides support networks online, and in-person. They also attend medical conferences to raise awareness to the medical community and host the National EOS Awareness Week and Feeding Tube Awareness Week yearly. They also support the allergy community through social media and issue grants for medical research projects into EGID.
Australia
36, Ord Street, West Perth, Western Australia, 6005, Australia
Donna Rendell, CEO
Asthma WA provides free individualized education and support to Western Australians with asthma and chronic obstructive pulmonary disease (COPD) and their carers, to improve health and wellbeing and decrease preventable ED presentations, hospitalizations and deaths. We aim to reduce the health, social and economic impacts of asthma and COPD through better management of these conditions, keeping people
well in the community. We also provide education and training in group settings for GPs, practice nurses, pharmacies, schools, sporting clubs, workplaces, child-care centers, and prisons and advocate on behalf of our consumers to reduce complacency and stigma.
Australia
10, Gladstone Road, Castle Hill, New South Wales, 2164, Australia
Maria Said
A&AA’s vision focuses on improving the quality of life of all Australians living with allergic diseases. Increased community awareness, patient education, and support are critical to improving health and wellbeing. A&AA is the only established and recognized national patient advocate driving the mission of listening, guiding, and educating Australians living with all allergic disease(s). A&AA has health educators trained in allergic disease responding to requests for help to our free national support line (which provides assistance across multiple channels – telephone, email, private messages). A&AA works closely with peak medical bodies including the Australasian Society of Clinical Immunology and Allergy (ASCIA). A&AA is a proud founding partner (alongside ASCIA) in co-chairing the National Allergy Strategy (“NAS”). As at 29 November 2021, A&AA has 7,607 members/subscribers and over 62,000 social media followers. The subscriber base is representative of the general population spread accordingly in every state and territory of Australia.
Argentina
894, Doctor Enrique Finochietto, Buenos Aires, Buenos Aires, C1272, Argentina
UNASMA is the International Foundation for Asthma and Allergies. Founded in New Orleans, USA, in 1996 as the Pan American Union of Asthma and Allergy Foundations — Union Panamericana de Fundaciones de Asma y Alergia (UNASMA), the organization was re-founded in Argentina under its current name in 2003. UNASMA aims to coordinate and share athletic events and educational activities for asthmatic patients and their families, and promote further study in the field.
Red Inmunos is a non-profit association for parents of children with food allergies. The associates are the parents of children who, in the first months or years of life and who have just been diagnosed, need reliable information on how to move about from day to day. Red Inmunos prepares guides and videos for schools and parents and carries out training sessions in conjunction with health professionals and food companies to train their employees. Red Inmunos belongs to the Food Allergens Platform, which is an interdisciplinary association with state agencies and food companies and allergen control kits.
Argentina
894, Doctor Enrique Finochietto, Buenos Aires, Buenos Aires, C1272, Argentina
Natalio Salmùn, President
Based in Buenos Aires, Argentina, Fundaler is the Foundation for the Study of Asthma and Other Allergic Diseases. Established in 1982 by the Argentine Association of Allergy and Clinical Immunology, the organization believes that education is the best prevention – which in turn is the best treatment. They provide resources on asthma and other allergic diseases and related health conditions, such as pneumonia, COPD and COVID-19.
Argentina
909, Moreno, Buenos Aires, Buenos Aires, C1091, Argentina
Alvaro Pérez Centeno, Account Manager
The Association raises awareness about the importance of asthma and its treatment for patients suffering from the disease. They also engage patients and families to contribute to the improvement of the quality of life of asthma patients and their families and contribute to improving the quality of life. The organization collaborates with the medical and scientific community for the adequate development of the treatment of patients. They promote the organization’s objectives and plans/projects to relevant stakeholders (Ministry of Health, other policymakers, and professional healthcare organizations..) The organization advocates with national, provincial, and municipal governmental authorities on patient regulation and protection, access to medication, and other regulatory aspects. Also, they propose structures and forms of funding for educational, advertising, and medication access programs for asthma patients and promote products and services that contribute to the quality of life of asthma patients.
Argentina
913, Pringles, AEQ, Buenos Aires, C1183, Argentina
Gabriela Carina Chromoy, President
The Argentine Association of Latex Allergy (AAAL) was born in 2011, as a result of the joint effort of a multidisciplinary team of professionals to raise awareness about latex allergy, an acquired and life-threatening but a preventable condition that, to date, has no curative treatment. With the mission of contributing to the prevention of sensitization to natural rubber latex and associated foods in exposed workers, at-risk groups and in the general population, and to advocate for improving the quality of life of those affected and their families, the AAAL became a Non-Profit Civil Association, obtaining its legal status on October 27, 2017.
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