Recent GAAPP Publications and Conference Presentations
Education Recruitment Opportunity
Relevant News
From the Chief Scientific Officer Desk
Research News and Opportunities
Recruiting Research Opportunities
Asthma
Clinical Trial Recruitment: Help researchers test a modified asthma inhaler with an approximately 90% lower carbon footprint.
Inclusion criteria:
Mild to moderate asthma
18 years or older
Lives in US, Canada or Latin America
Click here to see if you are eligible to participate!
Advisory Board: Looking for 6-8 patients with uncontrolled asthma in the UK and EU
Inclusion Criteria:
18 years old or older
Speaks English
Lives in Europe or the United Kingdom
Willing to provide feedback on the direction of asthma research and the unmet needs in the asthma community
Email research@gaapp.org if interested in lending your voice to research!
Bronchiectasis
Bronchiectasis Understanding and Research on Daily Experiences and Needs or The BURDEN initiative is a research project to examine the impact of Non-Cystic Fibrosis Bronchiectasis (NCFBE) on the everyday life of people living with NCFBE and their caregivers. It is also commonly referred to as bronchiectasis (without cystic fibrosis) or just bronchiectasis. Bronchiectasis is a chronic, often progressive lung disease characterized by irreversible and abnormal widening of the bronchi and chronic symptoms.
For more information, click here!
GAAPP Publications and Conference Presentations
Our CEO Tonya Winders, along with the GAAPP team participated in the European Academy of Dermatology and Venerology (EADV) in Amsterdam, highlighting the fact that new treatments effectively alleviating the burden of CSU symptoms are required to improve general and mental well-being in patients lives.
Impact of chronic spontaneous urticaria on health-related quality of life domains: Country-specific data from patients participating in the Urticaria Voices study by Tonya A. Winders, Jonathan A. Bernstein, Jessica McCarthy, Pallavi Saraswat, Nadine Chapman-Rothe, Tara Raftery, and Karsten Weller.”
Our CEO also co-authored the following publications this month:
Leukotriene receptor antagonists as add-on therapy to antihistamines for urticaria: Systematic review and meta-analysis of randomized clinical trials https://pubmed.ncbi.nlm.nih.gov/38852861/
GAAPP is collecting short video testimonials that will help us tell the world about COPD, atopic dermatitis, and chronic cough. If you have one of these conditions or are a caregiver for someone who does, please reach out to us at info@gaapp.org .
Recording your story takes approximately 30 minutes and can be done using your smartphone. Thank you!
Relevant News
Member Survey Results
Prior to the GAAPP Summit in September, GAAPP conducted a survey of our Member Organizations to help us set objectives for 2025. The infographic above highlights key survey results. We shared more specific details on Research in the September newsletter. We are grateful to all of the respondents who shared important insights with us.
Patient Engagement Synapses Digital Health Roadmap
With increasing use of digital health tools, the PFMD has generated a draft toolkit: “The Patient Engagement Digital Roadmap: Co-Design Digital Health Solutions with People & Patients” for public consultation that organizations commented on in October. GAAPP added it as a tab on our Research webpage.
An educational video from our CAAT collaborator Pink Tree Health
Pink Tree health produced a video where Prof Paul Jones discusses the importance of using digital health tools such as the ACT to track health status between clinic visits to support informed treatment decisions.
From the Chief Scientific Officer Desk
In October, our GAAPP Research team focused on planning strategies for recruitment for several studies; some already listed above, a lot more opportunities to engage in research come!
We have also been working on the design, programming and ethics submission of several surveys for people living with and caring for children with atopic dermatitis and asthma. We will be announcing these surveys in social media in November and I hope that you will join our efforts to elevate the global patient voice.
Looking forward to November, our Research and Education team will participate in GOLD 2024 November 12-13 in Philadelphia; come visit our GAAPP booth and hear about the CAAT and “Speak Up for COPD”.
Chief Scientific Officer Ruth Tal-Singer, PhD
GAAPP strives to empower patient-centered research and culturally appropriate community education by recruiting participants for clinical trials, surveys, focus groups, and interviews in partnership with our member organizations and many collaborators. We do our best to empower our global community aiming to elevate the patient voice from different regions of the world, including regions who do not normally participate in clinical research.
