June has been a hectic month! EAACI did not disappoint with over 8000 attendees & breaking scientific advancements in allergy, airways & atopic diseases. We gained several new industry partners & connected with dozens of key opinion leaders. I was also asked to be a formal advisor to EAACI leadership!
As many of you head to our AGM or spend time unwinding during holiday, check out what several of our member organizations have been up to here…
Or take time to listen in to these new GAAPP Webinars…
The Patient View Survey highlighted below shares interesting insights into working with industry partners. Also, don’t forget to engage in our AD or CU coffee chats to collaborate with others in your GAAPP disease area community.
Finally, let me know if you are interested in a private discussion to advance access to biologics in your country. We are making headway in LATAM, China & Eastern EU. We would love to add you to our efforts!
I can hardly wait to see many of you in Santiago & Vienna in the coming weeks! Stay the course of the amazing work advocating on behalf of patients!
All my best,
Tonya
GAAPP News & Opportunities
AGM and SAREAL – Register to attend online
Our two events in Chile, AGM and SAREAL, are just around the corner. We look forward to seeing some of you in person. Those of you, who cannot meet us in Chile, are still invited to join us online. Translations in Spanish, English and French will be provided, if you need other languages please let us know. All information about AGM will be sent to you next week.
Attend SAREAL online (for Ibero/Latin American Organizations) HERE!
Are you eager to enhance your advocacy skills for better access to biological medications?
Do you want to take action and reach out to policymakers, but you don’t know where to start? At GAAPP, we’re dedicated to empowering patient advocates through a personalized training and capacity-building session that is adapted to your country and advocacy needs. Want to learn more about our 1:1 sessions? Email us at info@gaapp.org today.
Do you want to learn more about Biological Medications, click here.
Get Involved
Study: Are patient groups essential healthcare stakeholders in 2024?
The survey hopes to quantify the significance of patient organizations (like your own) within healthcare systems, determine how your patient organization is perceived by other healthcare stakeholders—in your opinion, map the activities of your patient organisation (and others) and learn about the types of support that your organization needs if it is to fulfill its goals, and improve patient outcomes.
The study has been initiated by PatientView, which is research, publishing, and consultancy group, created out of a belief that the views of patients should be considered in all important healthcare decisions (whether a new healthcare product is being developed, or whether a government is instituting changes to a health system).
To be sure that your response is received in time, please complete it before the survey’s closing date of Friday 26th July, 2024.
Asthma: The Family Handbook – Project success in Nigeria
The Asthma book, made by our Nigerian patient organization ASMARCAP and supported by GAAPP, was distributed to over 7,000 asthma patients and non-asthma patients, government agencies, banks, schools, both secondary and tertiary institutions and others, with the intent to educate and empower individuals. The project, that was produly supported by GAAPP. increased engagement by Nigerian patients sharing experiences and seeking support.
Transforming Respiratory Diagnostics: The Way Forward
Asthma + Lung UK join forces with LifeArc to create a report, based on their joint workshop from last year, where they brought together a diversely skilled group of 100 people including clinicians, academics, innovators and people living with respiratory disease to discuss the issues and how to address them. This report highlights the urgent need for a step-change in how lung diseases are detected, treated and managed.
Gambian National Campaign for World Asthma Day 2024
Our member organization Asthma and Allergy Foundation of West Africa organized a series of month long Asthma advocacy activities around the global THEME: ASTHMA EDUCATION MATTERSwith the support from GAAPP. Their aim was to make an impact and demand support, effective attention on asthma and to emphasize the need to empower people with asthma with the appropriate education to manage their disease, and for them to recognize when to seek medical attention.
Reminders
GAAPP Resource Updates
Download our free chronic urticaria informational flyer here. This basic overview of chronic hives is available in five languages – and our translations library is growing each week!
Did you miss our webinar on nasal polyps?
No need to worry; we’ve got the recording for you. Learn more from our medical expert and two people with nasal polyps in this important session here.
In case you missed these informative webinars, they are available now:
