Capacity building program for vaccination in pregnancy
10,11 July 2024
AGM & SAREAL
Tonya Winders, GAAPP President
From the President’s Desk
The mid-point of 2024 is quickly upon us & we are actively preparing for the upcoming annual general meeting where we will elect board members and celebrate continued success of GAAPP. Please make plans to join us virtually if unable to attend in Chile.
Also, welcome our newest members from Mexico, Argentina, Italy & Belgium. One new member, Alliance of PH, has members throughout Europe & Japan.
A huge thank you & congratulations to all on a successful World Asthma Day 2024. See highlights from several events below….
This newsletter is packed with interesting information on the pharma industry annual corporate reputation, as well as a new GAAPP authored publication on monitoring asthma in children.
Finally, check out AboutAsthma.org a new EFA website which will be sure to help millions of people across the globe.
I can hardly wait to see many of you next month. Please travel safely & continue advocating for those living with allergic, atopic & airways diseases.
All my best,
Tonya
GAAPP News & Opportunities
AGM and SAREAL in person Registration Now Closed
On May 4th we closed the registration, but you can still attend both events online. Translations in Spanish, English and French will be provided, if you need other languages please let us know. Register to attend online!
Attend SAREAL online (for Ibero/Latin American Organizations) HERE!
GAAPP Board of Directors election 2024
As stated in our constitution, each elected board member has a mandate for 3 years so we have now reached the conclusion of 2 terms, the President and Vice-president of the Board, to which we have formally opened the call for candidates. The voting will be held during the AGM in Chile in person and online.
On 7 May, World Asthma Day 2024, the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) launched AboutAsthma.org, an innovative online guide for asthma patients and carers, in three new languages: French, Italian and Spanish in collaboration with AFPRAL (France), Respiriamo Insieme (Italy) and FENAER (Spain).
The newly launched AboutAsthma.org is poised to bring about significant change, providing educational support to asthma patients and their caregivers.
New #GAAPPCoauthoredPublication:
“Recommendations for asthma monitoring in children: A PeARL document endorsed by APAPARI, EAACI, INTERASMA, REG, and WAO”. Following an approach that included needs assessment, evidence appraisal, and Delphi consensus, the PeARL Think Tank, in collaboration with major international professional and patient organizations, has developed a set of 24 recommendations on pediatric asthma monitoring, to support healthcare professionals in decision-making and care pathway design.
Patient View Corporate Reputation of Pharma Survey Results:
During, and immediately after, the Covid-19 pandemic, pharma saw a significant increase in its approval ratings among patients, patient groups, and the public at large. However, the results of the 2023 survey contain early indications that pharma’s elevated reputational status may not be sustainable. While respondent patient groups from some countries reported increases in the industry’s corporate reputation in 2023, respondent patient groups from Australia, a number of European and Latin-American countries, as well as patient groups from the USA, judged pharma’s corporate reputation to have declined in 2023.
To download a PDF copy of this press release click HERE!
Member News
Cross the Goals 2nd Atopic Dermatitis conference in Puerto Rico
GAAPP proudly supported the 2nd symposium on Atopic Dermatitis in Puerto Rico. The event was a celebration of the signing into law of the recognition of Atopic Dermatitis in Puerto Rico thanks to the efforts of Cross the Goal Foundation Inc., our member organization. The symposium educated patients and HCPs.
Our member organization The Community And Family Aid Foundation in Ghana organized a series of month long Asthma advocacy activities around the global THEME: ASTHMA EDUCATION MATTERS with the support from GAAPP. Their aim was to make an impact and demand support, effective attention on asthma and to emphasize the need to empower people with asthma with the appropriate education to manage their disease, and for them to recognize when to seek medical attention.
Reminders
GAAPP And LATIN HEALTH Leaders capacity building program for vaccination in pregnancy in Spanish
Starting on May 8th, Latin Health Leaders launched a course on Maternal Immunization Advocacy. Through 10 modules, LHL will explore everything from immunization basics to advanced advocacy strategies and public policy. Each module prepares you to be a stronger and more effective advocate. This course not only provides you with information, but prepares you to be a change agent, strengthening your leadership and advocacy skills. Upon completion, you will be ready to make a palpable difference in maternal and newborn health. You can still join them, the next module is on June 6th 2024.
Register today and start your journey 👉 click HERE!
New Members
Alliance for Pulmonary Hypertension
Belgium
ARCO – Associazione per la Ricerca e Cura dell’Orticaria
Italy
Asociación civil de dermatitis atópica argentina – ADAR
Argentina
Fundación Respira e Inspira A.C
Mexico
We proudly represent 124 organizations in 52 countries from all continents
We advocate for 20Pathologies across all allergy, atopic, and airways diseases
More than 30 papers published and supported more than 30 multi-stakeholder projects