Fundación Colombiana para Enfermedades Huérfanas o Poco Frecuentes FUNCOLEHF (Colombia)

Colombia

Colombia

Email

3229042745

Adriana Marcela Solano

The Colombian Foundation for Orphan Diseases (Funcolehf) is a non-profit organization dedicated to improving the quality and quantity of life of families with orphan diseases such as Alpha 1 Antitrypsin disease and Cystic Fibrosis. Its services: Community Services Social Work Spiritual Group Training Support Specialists Integral Form Public Health Surveillance Economic Evaluation in Health Community Pharmacovigilance In addition, Funcolehf is dedicated to advocacy, intervene in public policy, be an entity of oversight and control before the superintendence of health, the Attorney General’s Office, Ombudsman, Ministry of Health supporting more than 1,000 families.