International FPIES Association (United States of America)
United States
330, River Avenue, Point Pleasant Beach, New Jersey, 08742, United States
Fallon Schultz
The International FPIES Association (IFPIES) is a global patient advocacy organization dedicated to advancing research, education, support and awareness on behalf of pediatric and adult patients impacted by Food Protein-Induced Enterocolitis Syndrome (FPIES). IFPIES has spearheaded multiple initiatives shaping the clinical, research and advocacy landscape of non-IgE mediated food allergy including the creation of an official ICD-10 code, development of the first International Consensus Guidelines for the Diagnosis and Management of FPIES, a congressionally supported National FPIES Awareness Day and most recently, the inclusion of FPIES in the Consortium of Food Allergy Research (CoFar) resulting in the first-ever awarded NIH research grant. IFPIES participates in societal and committee work groups worldwide and represents nearly 2 million patients nationally. We are deeply committed to addressing comorbidities within our patient population while advocating for advancements that reflect the realities of living with FPIES.