Research Recruiting Opportunities

We strive to empower patient-centered research and culturally appropriate community education by recruiting participants for clinical trials, surveys, focus groups, and interviews in partnership with our member organizations and many collaborators.

We do our best to empower our global community aiming to elevate the patient voice from different regions of the world, including regions who do not normally participate in clinical research.

Albert Einstein said, “Don’t listen to the person who has the answers; listen to the person who has the questions…”

Clinical research studies involving thousands of volunteers led to new approaches to prevention and care delivery, the development of new medicines, and improved medical devices.

The attached infographic shows one example of the impact an observational (no change in treatment) study led by GSK and its international collaborators in chronic obstructive pulmonary disease (COPD).

GAAPP recruit participants to help your questions find the answers and inform better care delivery, improved treatments, new therapies, and better medical devices.

Join moderator Kristen Willard for this one-hour webinar aired by GAAPP in November with the aim to help people living with chronic conditions feel confident and informed about getting involved in health research. At this event, you’ll learn how your experiences and opinions can make a real difference in shaping studies, improving care, and driving innovation. We’ll explore different ways patients can take part in research – including clinical trials, surveys, or focus groups – and what being a part of research involves. You’ll hear from patient advocate Dr. Tina Mesaric, researcher Dr. Ruth Tal-Singer, and health care professional Dr. Bartolome Celli, who shared their insights on working together to make research more meaningful and patient-centered.

Watch the webinar

Community Surveys

The experience and insights collected from a community can be used to help researchers learn about the unmet needs of patients and guide the development of new resources, educational materials and treatments. Anonymous surveys provide important information about essential issues within the community that need to be solved. If you have any questions, please email 

GAAPP has been collaborating with the Copenhagen Institute for Futures Studies on a new programme of work about the future of COPD prevention and management at both the practice and policy level. As well as the production of an index which will compare countries. They are also undertaking a Delphi study. Participate in the survey: https://forms.office.com/Pages/ResponsePage.aspx?id=jjvZyuMbfkev96kAQ_f4JF5B1eH4Ax1DqWqw5zY0vytUMFE0QzhYR0w0UE5WNzk0TlQxRkc3UTJVMC4u

Have you used the Bronchiectasis Toolbox? We would love to hear from you.

Do you have bronchiectasis, or care for someone who does? You are invited to take part in a short online survey about your experience with the Bronchiectasis Toolbox.

Why take part?
Your feedback will help improve online resources and support people living with bronchiectasis.

Who can take part?

  • Adults living with bronchiectasis
  • Caregivers of children or adults with bronchiectasis
  • Person completing the survey is aged 18 years or older
  • Have used the Bronchiectasis Toolbox in the past 10 years

What’s involved?
🕒 Takes about 15 minutes
🔒 Anonymous
✔️ Voluntary

Take the survey
📱 Scan the QR code or 🔗 Visit the survey

QR code to the Bronchiectasis Toolbox Survey

Have you been diagnosed with COPD? A new survey is available about the use of corticosteroids, such as prednisone and COPD. Click here to share your experiences with corticosteroid tablets, and your thoughts on how we can reduce the risks of underuse and overuse and side effects.

Our allied medical organization EUFOREA is conducting a short, anonymous survey to better understand what really matters to you in your treatment.

If you live with a chronic conditionaffecting your nose, sinuses, or lungs, you’re invited to take part. The survey takes about 5-10 minutes and will help us improve in defining control, remission and cure from our patient perspective. 

Take the survey: https://form.jotform.com/252883100664355 Or scan the QR code:

Advisory Boards, Focus Groups and Patient Insights

Patients and caregivers have unique experiences that others can learn from, experiences that are unknown to researchers. Ad Boards serve a fundamental purpose in providing the patient voice, an informed perspective on the related topics being studied. 

Seeking people from the US or Canada living with chronic rhinosinusitis with nasal polyps in both nostrils for participation in a research panel.

If interested, please contact  for the details.

Looking for patients with Respiratory Virus (RSV) experience from all over the world, except UK, Spain and China.

Inclusion criteria:

  • 60 years or older
  • RSV doctors notice

To find out more information, email us at .

Looking for 7 patients globally

Inclusion criteria:

  • Adult 18 years or older
  • Diagnosis of non-cystic fibrosis bronchiectasis
  • Can speak basic English, French, or Spanish
  • All regions

To find out more information, email us at .

Clinical Trial Recruitment

Before a new treatment can be approved for use, a thorough process of research needs to take place. Clinical studies are an important step in that process.  Treatments might be new drugs, surgical procedures or devices, as well as new ways to use existing treatments. 

The Redwood Study is currently enrolling adults 18 to 75 years of age with Alpha-1 Liver Disease. The purpose of the study is to evaluate how safe and effective an investigational study drug is compared to a placebo (both groups will receive injections, but the placebo contains no active medication) in the treatment of liver disease. 

If you or any of your family members have a confirmed or suspected diagnosis of Alpha-1 Liver Disease, you may be eligible. A participating research site can confirm a diagnosis of Alpha-1 Liver Disease as well as other study criteria to determine eligibility. To learn more and see if you may qualify, please visit TheRedwoodResearchStudy.com.

The ARIA Study is evaluating a similar once daily, single inhaler, triple therapy containing three medicines: fluticasone furoate, vilanterol and umeclidinium (FF/VI/UMEC), for the treatment of asthma in teenagers. All participants will receive asthma treatment and quick relief “rescue” treatment to use as needed for asthma symptoms throughout the study. Study Criteria:

  • Have been on stable maintenance therapy for at least 6 weeks
  • Are aged 12-17 years old

  • Have uncontrolled asthma


To learn more, visit the clinical study website at teenasthmastudy.com.

If asthma interrupts your daily life, the J2S-MC-GZMR clinical research study may be for you. The J2S-MC-GZMR clinical research study is evaluating whether a new investigational medicine may be effective for the management of asthma symptoms. This investigational medicine will be tested for its effectiveness to potentially improve metabolic health and reduce inflammation, which together may provide relief for asthma symptoms. The metabolic system controls how the body turns food into energy and is also associated with asthma symptoms and inflammation.

Study Criteria:

  • Are aged 18-75 years old
  • Have been diagnosed with asthma
  • use an inhaler on a regular basis

You may be able to stay on your current asthma medications while participating in this clinical research study. Some study visits can be completed remotely, either by telephone or telemedicine. To see if you qualify and if there is a study site near you, view the following list: 

Living with itchy, painful hives? Be part of advancing research for Chronic Hives

The EMBARQ Study for Cold-induced Urticaria (ColdU) and Symptomatic Dermographism (SD) is now enrolling volunteers. This research study is evaluating the safety and effectiveness of an investigational medication, given by injection, for people living with these conditions.

Individuals may qualify for the study if they:

  • Are 18 years of age or older
  • Have been diagnosed with ColdU or SD for at least 3 months prior to their first screening visit
  • Continue to experience hives or itching despite daily use of an antihistamine such as cetirizine (Zyrtec®), fexofenadine (Allegra®), or loratadine (Claritin®)
  • Have been on a stable daily dose of an antihistamine for at least 4 weeks before joining the study*
  • Are willing to maintain a simple daily diary and comply with study procedures
  • Are willing to have tests on the skin that may temporarily cause hives or swelling
  • Meet additional study criteria, which the study doctor will review during screening

*Please ensure you have an updated list of all medications you are currently taking or have recently stopped taking to discuss further with the study doctor.

Ask your doctor if the EMBARQ-COLDU and SD Study may be right for you. You can also get more information and see if you prequalify by visiting the study website: 

Are you living with a persistent cough? The LAKE trial may be right for you.

The LAKE trial is enrolling patients in Canada and the United Kingdom to participate in an approximately 13-week clinical trial which includes 7 in-person visits. The trial is seeking to understand different doses of an investigational treatment and its potential effects on cough.

During the trial, participants will be randomly assigned to take either the investigational treatment or placebo, in the form of an oral tablet, twice a day for 6 weeks. Three out of every four participants will receive the investigational treatment.

You may be eligible to enter the LAKE trial if you:

  • Are 18 or older
  • Have had a persistent cough for at least one year

There are other requirements for entering the LAKE trial. Speak with your doctor to determine if entering the trial is right for you.

There is no cost to join the trial. You will be paid back for trial-related expenses.
To learn more and to find your closest trial location, visit:

If you are interested in participating in any of these opportunities, please contact us at and reference the opportunity name.

Education Recruitment Contribution Opportunities

Volunteer opportunities related to education such as speaking roles and video recordings to help share your patient journey. If they are interested in contributing but do not see an opportunity listed, they can contact    

Tell Your Story

Are you a person with COPD, atopic dermatitis, or chronic cough and want to tell your health journey or treatment story? GAAPP is collecting short video testimonials and is interested in hearing from you! Recording your story takes approximately 30 minutes and can be done using your smartphone. Interested to learn more? Email us at .

Rare Patient Voice – Get Involved in Research!

Share your experience. Make an impact.

GAAPP has partnered with Rare Patient Voice to help patients and family caregivers access research opportunities. By signing up, you can receive notifications about relevant paid surveys, interviews and online research communities.

💬 Share your experience. Get paid $120/hour.

Simply sign up for free to receive notifications when a research opportunity may be a good fit for you. There is no cost to join, and you can choose whether or not to take part in each opportunity.

Opportunities are currently available in several countries, including Spain, the United States, Canada, the United Kingdom, France, Germany, Italy, Australia and New Zealand.

Are you a patient or family caregiver? Sign up today and make your voice heard in research.

Join Rare Patient Voice

Last Edited 8/26/2026