Understanding Uncontrolled Chronic Urticaria

Living with uncontrolled chronic urticaria (CU), also known as hives, can be far more than just itchy skin. Here you can find more information about the experiences of CU patients regarding:

  • the impact of CU on quality of life
  • the perceptions of disease control
  • treatment goals
  • the importance of patient advocacy organizations
  • the importance of patient-reported outcome tools and shared decision-making

Healthcare providers, you are also important! We offer insights on incorporating patient perspectives into your practice and explore evidence-based tools to improve patient care.

Let’s work together to create a future where everyone with CU can thrive.

Check the images below to learn more.

For People with Chronic Urticaria

For People with Chronic Urticaria and Health Care Professionals

For Health Care Professionals only

If you are a person living with CU, try our Share-Decision Making Tool and discuss the results with your providers. If you are a healthcare professional, we encourage you to share it with your patients.

For more resources to help you find support and learn more about CU, visit our resource page.


References:

  1. J. Bernstein, T. Winders, T. Raftery, P. Saraswat, J. McCarthy, M. Kuruvilla, M. Balp, K. Weller. 2023. Ann Allergy Asthma Immunol 131(5): 10.1016/j.anai.2023.08.120
  2. P. A. Laires, M. Balp, K. Weller, T. A. Winders, J. A. Bernstein, M. Dricu, S. Flierl, L. Christen, N. Janssens, S. Smeets. 2023. https://www.urticariaknowledgecenter.novartis.com/EAACI/presentations/2023/Posters/EAACI2023_Divergent_Patients_and_Physicians_Perceptions_Poster.pdf [Accessed 10/05/24]
  3. M. Coste, J.A. Bernstein, P. Laires, M.M. Balp, P. Saraswat, T. Raftery, J. Mccarthy, M. Dricu, T.A. Winders, K. Weller. Revue Fran d’Allerg: 10.1016/j.reval.2024.103858
  4. Join Urticarie Chronique (Canada). https://www.youtube.com/watch?v=3XFtAwFBDUQ [Accessed 10/05/24]