The Center of Excellence for Patient Safety and Quality (CoE-PSQ) is the first organization in Indonesia dedicated to the quality of care and patient safety. As a pioneering institution in this field, CoE-PSQ aims to address issues related to quality of care and patient safety through institutional capacity building, strengthening the research ecosystem, and fostering innovation. They are committed to improving patient safety through research and education. Their focus is on advocacy and the development of initiatives aimed at enhancing patient safety in hospitals and healthcare institutions. Furthermore, they strive to raise awareness about the importance of patient safety issues and to be a leader in the field of patient safety research.

• • Facebook: https://www.facebook.com/PusatRisetKeselamatanPasien
  • Instagram: https://patientsafety.unair.ac.id/
  • YouTube: https://www.youtube.com/@pusatrisetkeselamatanpasie5284

The Coalition aims to promote respiratory health through education, raise awareness, organize prevention campaigns, and collaborate with medical institutions.

To achieve its goals, the Coalition is granted all rights under the legislation of the Republic of Moldova, including the ability to implement civic, cultural, and educational initiatives, conduct scientific activities, and freely disseminate information. It can also receive financial support from domestic and international sources, fund programs, and provide scholarships and material aid. Additionally, the Coalition defends the interests of its members and others within the bounds of the law, working to advance respiratory health and well-being.

• • Facebook: https://www.facebook.com/share/1U18FVRHzz/?mibextid=LQQJ4d
  • Twitter: https://x.com/CSRMoldova?t=ofsbwUbXUYF2a4WWwK5TPw&s=03

The Lung Disease and Transplant Association of Israel is a patient organization dedicated to supporting lung disease patients, their families, and lung transplant recipients in Israel. The association strives to provide accessible information, organize webinars and professional conferences with specialized lectures for patients, and conducts extensive digital activity on social media (Facebook and WhatsApp) through unique communities tailored to each condition.
The association manages several communities, including those for patients with ILD and pulmonary fibrosis, COPD, asthma and allergies, bronchiectasis, PCD, silicosis, pulmonary hypertension, cystic fibrosis, tuberculosis, and LAM.
Additionally, the association actively works to improve services and patient rights in collaboration with healthcare institutions, health funds, hospitals, the Ministry of Health aiming to enhance the quality and accessibility of care for lung disease patients and their families.

• • Facebook: https://www.facebook.com/LungTransplantsIsrael
  • Twitter: https://x.com/lungsisrael?s=21
  • LinkedIn: https://il.linkedin.com/company/lung-disease-and-transplant-association-of-israel?trk=public_post_follow-view-profile
  • Instagram: https://www.instagram.com/lung_association_israel
  • YouTube: https://www.youtube.com/@LungAssociationIsrael

Revista Alergia specializes in advancing allergy and immunology through its peer-reviewed journal, focusing on research articles, case studies, and clinical reviews. We serve healthcare professionals, including allergists, immunologists, and primary care providers, offering the latest updates, educational resources, and CME opportunities.

Our content indirectly benefits patients with conditions like asthma, allergic rhinitis, food allergies, eczema, and anaphylaxis, across all age groups. Primarily targeting Spanish-speaking regions, our publication has a global reach, promoting evidence-based care. We aim to bridge research and clinical practice, enhancing patient outcomes in allergy and immunology.

• • YouTube: https://www.youtube.com/@colegiomexicanodeinmunolog339

The Center for Innovation and Education for Patients and Families, publicly known as the University of Patients and Families, is an academic innovation center dedicated to offering accredited training to patients, their families, caregivers, volunteers, and healthcare professionals. In collaboration with universities, scientific societies, and foundations, the center’s primary mission is to empower patients through education, ensuring their active participation in healthcare decision-making and recognizing the value of the lived experience of illness. Through its work, the center aims to promote greater involvement and awareness in health management, fostering a more informed and engaged community.

• • Facebook: https://www.facebook.com/upfpacientes
  • Twitter: https://x.com/upfpacientes?mx=2
  • LinkedIn: https://www.linkedin.com/company/upfpacientes
  • Instagram: https://www.instagram.com/upfpacientes/#

The organization envisions a future where Australians living with eczema can overcome the challenges associated with the condition and thrive within their communities. This vision is driven by a commitment to connection, advocacy, and the provision of essential information.

Their mission is to connect Australians affected by eczema, ensuring that no one facing the condition feels isolated or alone. They aim to inform and educate individuals, equipping them with the knowledge and tools needed to manage eczema effectively. In addition, the organization is dedicated to advocating for practical support and improvements that enhance the lives of Australians impacted by eczema, working to ensure better resources, care, and overall well-being for those affected. Through these efforts, the organization strives to create a more informed, connected, and supportive environment for everyone living with eczema across Australia.

• • Facebook: https://www.facebook.com/EczemaSUPPORTAustralia
  • LinkedIn: https://www.linkedin.com/company/18742422/
  • Instagram: https://www.instagram.com/eczema_support_australia/
  • YouTube: https://www.youtube.com/@eczemasupportaustralia

Public Health Initiative is a non-profit organization registered under the Companies Act of Nepal. With the slogan “Social Innovations in Public Health,” their mission is to provide equitable access to accurate, timely, and easily understandable public health information.

• • Facebook: https://www.facebook.com/publichealthupdate
  • Twitter: https://twitter.com/PHealthupdate
  • LinkedIn: https://www.linkedin.com/company/publichealthupdate
  • Instagram: https://www.instagram.com/publichealthupdate

The National Association EOE-MORE THAN ALLERGY brings together all patients for whom the cause or consequence of their primary, rare, or chronic illness is an inhalant or nutritional allergen, as well as all rare diseases with the same etiology.

• • Facebook: https://www.facebook.com/share/YiKffyWg6YxKmjsn/?mibextid=LQQJ4d
  • Instagram: https://www.instagram.com/eoeviseodalergije?igsh=MXRwNXltMWtsNjNybQ==

The association aims to provide social support to individuals with limited resources who are affected by lung cancer and connected diseases, ensuring their well-being and promoting comprehensive health to improve their quality of life. In 2025, the organization plans to expand its services to include pulmonary health, specifically focusing on COPD. The association’s core pillars of work include advocating for public awareness of lung diseases as a critical public health issue that requires priority attention on the public agenda. It also focuses on health communication by forming partnerships to promote healthy lifestyles, and patient navigation, offering information, guidance, and support through a patient-centered approach that addresses individual, family, and community needs from a psychosocial perspective.

• • Facebook: https://www.facebook.com/respirandoconvalor.org
  • Instagram: https://www.instagram.com/respirandoconvalor/
  • LinkedIn: https://www.linkedin.com/in/respirando-con-valor-bb89185a?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=ios_app
  • YouTube: https://www.youtube.com/@respirandoconvalor583
  • Twitter: https://x.com/daunrespiro

This foundation consist of nine members both health-care and non-health care. The aim of the foundation is to save life, create awareness, and educate the health workers and we also train the community.- V- Life Savers Foundation has a vision and mission to save life of every human being and respond positively to the increasing demands for better livelihood attainment for children, youths, adults, women in health for communities development; to serve as entery point for all external development interventions in both urban and rural communities; to identify, plan and manage community projects aimed at promoting quantity, affordable, quality of life and the socio-economic welfare of the community in a lawful manner.

• • Facebook: https://www.facebook.com/profile.php?id=61566946914866&mibextid=wLd3L4GfO8w8OKO6

The Latin Pulmonary Hypertension Society is a non-profit corporation founded in 2005, dedicated to promoting awareness, support and education to improve the quality of life of patients affected by pulmonary hypertension, as well as rare, orphan, respiratory and chronic diseases in Latin America and globally. The society is committed to act as an umbrella organisation, coordinating and supporting other affiliated or related organisations working in areas related to these pathologies. It currently brings together 16 Latin American pulmonary hypertension patient organisations.

• • Facebook: https://www.facebook.com/LatinosConHP/
  • Twitter: https://twitter.com/LatinosConHP
  • LinkedIn: https://www.linkedin.com/company/17975409/admin/
  • Instagram: https://www.instagram.com/latinosconhp/

National, Norwegian organization for patients and families of patients with CHD. They mainly work with spreading awareness and creating community, and also pulmonary hypertension (PH) since CDH patients always have PH.

• • Facebook: https://www.facebook.com/cdhno
  • Instagram: https://www.instagram.com/cdhnorge/

National Health Action Force Nepal”(NHAFN)[राष्ट्रिय स्वास्थ्य कार्यबल नेपाल] is a NG-NPO registered in District Administration Office, Kathmandu (Regd. No. 230-2080/81) and affiliated to Social Welfare Council (SWC No. 56573) which has roots and commitment to the Country, is established with a Vision and main Motto of “Healthier and prosperous Nepal”. It mainly advocates and works for Health Equity via inclusivity and fairness in healthcare access among the nominal Nepalese Citizens. It is run by highly skilled, professional health workers of the country via collaboration and teamwork. It’s a rapid response team with a sustainable rapid response and agility in dealing with health emergencies. It has a proactive approach to health related issues and works to deal with all the ailments and facets related to health with the Vision, Healthier and Prosperous Nepal.

• • Facebook: https://www.facebook.com/profile.php?id=61557223140341
  • Twitter (X): https://x.com/nhafnteam
  • LinkedIn: https://www.linkedin.com/company/national-health-action-force-nepal/

AAL. Informs and helps people allergic to latex in managing their social and working life and the various problems that may arise with healthcare facilities. Raises awareness among healthcare professionals with meetings, debates, conferences, seminars and publications on the risk linked to latex allergy. Collects certifications of latex free products and devices. Helps search and slice latex safe routes and structures.

• • Facebook: https://www.facebook.com/AALattice1https://allergiciallattice.org

The PCD Patients Association of Israel is a dedicated organization representing over 400 individuals affected by Primary Ciliary Dyskinesia (PCD). Established to serve the unique needs of PCD patients, the association has been active for over two decades, with a structured approach to advocacy and support for the past ten years. The primary objective of the association is to enhance understanding and awareness of PCD, particularly its treatment options and relationship to Cystic Fibrosis (CF). They strive to educate patients and healthcare providers about the best practices in managing PCD, emphasizing the importance of individualized care.

• Facebook: https://www.facebook.com/groups/162609269105064/?locale=he_IL

AEDESEO is the only national non-profit association dedicated to representing patients with EoE, that works tirelessly to improve the diagnosis and assistance to those who suffer from this pathology. Born from the initiative of a consortium of affected families, their mission is to strengthen a support network that mitigates the clinical and psychosocial challenges associated with EoE, significantly raising their quality of life. With more than 580 partners distributed throughout Spain, with a greater presence in Madrid, Catalonia and Valencia, AEDESEO offers comprehensive services that range from nutritional advice to emotional and social support.

• • • Facebook: https://www.facebook.com/aedeseo/?locale=es_ES
    • Instagram: https://www.instagram.com/aedeseo/
    • YouTube: https://www.youtube.com/@AEDESEO

Their association is a patient association run mainly by patients and their families, and we strive to create a better medical environment based on the relationships among their members. Their main activities include: Holding a national PH conference, Issuance of newsletter, Management of homepage, Collaborative activities with academic societies and Collaborative activities with overseas patient associations and academic societies.

The Italian Bronchiectasis Association APS is a patient association established in May 2019 with the intent to help people with non-Cystic Fibrosis-related (non-CF) bronchiectasis and their families, and to raise awareness of this little-known chronic respiratory disease, which cannot be detected without a CT scan and is often confused with other diseases. The association employs its own multidisciplinary Scientific Committee, which curates webinars to deepen the knowledge and management of bronchiectasis, offers guidance to specialized facilities for the treatment of bronchiectasis, creates mutual support among patients from all over Italy through the Community cares for psychophysical well-being with the pathway called “Neighborhoods and Wellbeing.” It dialogues with institutions to recognize greater recognition in terms of exemptions and disability. Our association has more than a hundred associations mostly women.

• • • Facebook: https://www.facebook.com/AIBbronchiettasie/
    • Twitter: https://x.com/bronchiettasie
    • LinkedIn: https://www.linkedin.com/company/aib-associazione-italiana-bronchiettasie/
    • Instagram: https://www.instagram.com/aibronchiettasie?igsh=MTVib2RnbW9lMjAyYg==
    • YouTube: https://youtube.com/@associazioneitalianabronch2379?si=XBSTVWwGoh3tm8o8

COPD Foundation South Africa who provides patient support groups, works on patient advocacy and provides patient education.

• Facebook: https://www.facebook.com/groups/1965120670388092

A young foundation, with the aim to support patients diagnosed with teaching for the knowledge of their disease, its prevention, control and treatments used. They support patients from all over the country, carry out support meetings, teaching talks with the support of medical specialists and health professionals, and also carry out awareness campaigns about the impact of the diseases, supported by the media. They presented to the Assembly of Deputies a request for a Law to support skin diseases. And succeeded in getting it approved and ratified by the Presidency of the Republic Law Nº370 (Of Tuesday, February 07, 2023) “Which declares of national interest the acquired and inherited diseases, disorders and conditions of the skin and its annexes.”

• • • Facebook: https://www.facebook.com/apep.panama/
    • Instagram: https://www.instagram.com/apep_panama/?hl=es-es