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To our GAAPP Community:
It’s been a busy time for GAAPP! We successfully held our Global Respiratory Summit in Barcelona on 2 September and had a strong presence at the ERS following. We are inspired to keep moving forward and continuing to expand the voice of the patient globally! September marks two world awareness days, World Atopic Dermatitis Day and World Lung day, which leads into World Urticaria Day on 1 October. We are also preparing for the online Global Food Allergy Summit on 1-2 October.
We appreciate your participation in GAAPP and hope you will share ways we can better support your organizations! We are stronger together.
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To provide consistent messaging and support your social media efforts, GAAPP has partnered to create resources for the upcoming awareness days.
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World Lung Day (25 Sept) – “Asthma Care Access: The Voice of the Uncared”, a short documentary with testimonials from patients and health care professionals from LMICs about the challenges of getting asthma cared for, monitored, or controlled in the less privileged regions of the world. The member communication grant will be available until 25 Oct https://gaapp.org/wld2022/
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World Urticaria Day (1 Oct) – You can now download the social media toolkit, samples messages, poster and other resources on the offiicial U-Day website: https://urticariaday.org/
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The Global Food Allergy Summit was created for people living with food allergies, their families, and caregivers to provide support and education on diagnosis, prevention, and treatment options. Sessions are designed with the patient in mind to provide information on cutting-edge information that is practical and easy to understand.
Dr. Douglas Jones and Dr. Atul Shah, board-certified allergists and immunologists will host this two-day summit with a panel of diverse speakers, including pediatricians, psychologists, food allergy researchers, and food allergy community advocates.
Please join us for the 2nd annual Global Food Allergy Summit from Saturday, 1 October, to Sunday, 2 October, for this FREE virtual event.
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COPD Patient Empowerment Guides Translations
Our COPD Patient Empowerment Guides have been translated into Vietnamese. We would like to thank our Member organization the Ho Chi Minh Asthma, Allergy, and Clinical Immunology Society for their help to adapt and distribute this to the patients in Vietnam. If you want the guides translated into your language, please contact us, and we will do so for you. Translated guides.
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Resources for Caregivers and People Living with Eczema
Our new member, the Eczema Association of Australasia has kindly shared with GAAPP a handful of very valuable resources in English for Caregivers and People living with Eczema, including short guides on Allergy, Letters for the school, care plans, etc. Feel free to download and share
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1st Brazilian Forum on ATS for Rare Diseases
Participate and watch the 1st Brazilian Forum on ATS for Rare Diseases, an event the Institute will hold between the 24th and 25th of November, online and free of charge (in Brazilian Portuguese).
Register here
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Breaking the Asthma Stigma
“Breaking stigmas”, is endorsed by the Hospital Virgen Macarena of Seville, and dismantles myths about asthma. In this documentary in which our member, Sevilla Respira participates, six patients who overcame the Seville Triathlon take part and demonstrate that this respiratory disease is compatible with high competition sport. You can watch it in Spanish in this link.
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Health Works – Open Call for Collaboration Projects
Health Works is a patient-centric innovation hub founded and owned by AstraZeneca. Health Works looks for solutions to healthcare challenges and opportunities where AstraZeneca can add value through its knowledge, network, and experience. The outcome of these efforts might be new digital tools or smart devices, improved healthcare interactions, and ways of working, or increased knowledge or policy changes. Applications for collaboration will be accepted in September. Visit this link for more information.
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GAAPP held its annual Global Respiratory Summit on 2 September in Barcelona with 30 patient advocacy groups in attendance and an additional 36 registered to attend virtually. The day included an overview of the last year of GAAPP activities, campaigns, and projects followed by two interactive breakout sessions.
The first breakout session was divided by disease focus with group representing Asthma, COPD, and Rare Disease. These groups were tasked with identifying a priority message to drive awareness, as well as crafting messages to the patient community and health care providers, and concluding with a policy change need to improve outcomes.
The second Breakout session was segmented by regional representation, APAC, Africa + the Middle East, Balkan region, Europe, Ibero-America, and North America. The intent of these group was to discuss the challenges faced in these regions, potential solutions, and identify collaborations to achieve these goals.
Stay tuned for a comprehensive report from GAAPP with future plans created from these groups! View our group overviews.
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Our in-person attendees representing 30 patient organizations from around the world!
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![Image[16].jpeg](https://app.greenrope.com/users/myteam47477/Media189.jpg?1663351137686)
Brainstorming!
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GRS Attendee Reception – Attire to represent your culture was encouraged!
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Access the shared resources made available by some of our Member Organizations.
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GAAPP at ERS
In 2022, GAAPP, and the patient voice, was represented in multiple sessions including the late breaking news session presented by Ruth Tal-Singer from the COPD Foundation regarding the joint collaboration tobacco survey we updated members on last month, and the International Respiratory Coalition, which GAAPP is a charter member.
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![Image[3].jpeg](https://app.greenrope.com/users/myteam47477/Media192.jpg?1663353003073)
GAAPP President Tonya Winders ready for a busy week for GAAPP at the Convention Center!
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Tobacco Survey late breaking news. Are patients upset about tobacco companies acquiring medical device companies that treat respiratory conditions?
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Board of Directors Announcements
It is with mixed emotion that we announce that GAAPP Secretary Vanessa Foran has resigned from her position on the GAAPP Board of Directors. Vanessa has left her role as CEO of Asthma Canada after an outstanding six years that has expanded education and awareness, and improved policy and access to medication for patients in Canada. She will join the Canadian Anesthesiologists’ Society in October. We wish Vanessa well in her future endeavors and will miss her presence and leadership in GAAPP.
The Board will be appointing a new Director to this vacated seat until the next election cycle next spring. If you have an interest in representing GAAPP on our Board of Directors, please contact GAAPP.
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GAAPP President Tonya Winders was featured in World Leaders Magazine as one of the “World’s Most Passionate Healthcare Leaders to Follow in 2022“. Tonya’s commitment to patient advocacy is an inspiration to so many. Her leadership of GAAPP continues to be the cornerstone of our continued growth. Please join us in congratulating Tonya on this well deserved recognition!
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GAAPP Facebook Community – Join the Conversation!
GAAPP has a private Facebook group for our member organisations. Join the group today to connect to other organizations to increase collaboration! Scan the QR code to view the group and request to join, or click here!
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Llapan Kallpa is a non-profit organization whose main objective is to provide comprehensive support to people with Pulmonary Hypertension in Peru.
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We proudly represent 82 organizations in 41 countries from all continents
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We advocate for 19 Pathologies across all allergy, atopic, and airways diseases
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More than 20 papers published and supported more than 30 multi-stakeholder projects
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