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In this Issue
1. From the President’s Desk
2. GAAPP News & Opportunities
3. Get involved
4. Member News
5. Reminders
6. New Members
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Save the Dates!
| 25 Sept to 25 October |
World Lung Day Communication Grant |
| 1 Oct to 30 October |
World Urticaria Day Communication Grant |
| 18 October |
Urticaria Coffee Chat |
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Tonya Winders, GAAPP President
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From the President’s Desk
What a fantastic September we had together! Thank you to all who participated in the GRS 2023, ICAN & ERS! We are now headed to the ISAF, an EADV to represent the patient voice!
Don’t miss opportunities to get involved in World UDAY & World Lung Day activities outlined in this month´s newsletter. We will also connect you with new resources on our new member portal and website.
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| In case you missed it, we have a new health policy report Called “a breath of fresh air” on severe asthma. It is an important document that highlights the continued unmet needs.
Finally, welcome to our two new members “Chile Asma” and “Right2Breathe”. We are excited to have you as part of the GAAPP family!
All my best,
Tonya |
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Thank you for the best GRS ever!
We want to express our heartfelt thank to all the member organizations that attended our best-ever Global Respiratory Summit in Milan. More than 50 patient advocates came in person, and more than 20 attended virtually. We are humbled and energized by your commitment and willingness to work globally and advocate for the quality of life of the more than 600 million people with respiratory, atopic, or allergic diseases worldwide. Shortly, we will be sharing the full recording of the streaming and the summary of the breakout sessions but meanwhile, we wanted to celebrate you with this very special video.
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New Resources section
GAAPP has inaugurated a new section of our website where you can easily browse our nonperishable resources for education, advocacy, awareness and digital health.
These resources are all free, pubically available and translations can be requested for any.
Visit the new website section
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We want to showcase and promote YOUR resources and tools too
GAAPP wants to take advantage of our website and channels’ wide reach to promote the tools, resources, and best practices developed by our members. We will be contacting you personally to request if you want to showcase anything on our website, or you can contact our events and membership officer, Špela Novak snovak@gaapp.org
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Get Involved & Opportunities
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World Lung Day Communication Grant
To provide an actual global perspective, we asked 11 global patient advocates and leaders of patient organizations from 8 different countries and three continents what was the biggest challenge for Lung Health in their countries. We have prepared a social media toolkit to help us promote this video on the websites and channels of our member organizations.
More information
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World Urticaria Day Communication Grant
For 2023 #UrticariaDay, GAAPP, in response to the unmet needs expressed by our members during our monthly coffee chats, have created a campaign where we will support the Urticaria patient organiztions by promoting them.
A 200€ grant is offered to help us promote the video wether you participate with a video or want to promote the participating organization from your country or region.
More information
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A breath of fresh air: Addressing missed opportunities in severe asthma care
We are excited to share with you this report which GAAPP contributed to create in collaboration with AstraZeneca and The Health Policy Partnership (HPP) who consulted with a group of expert stakeholders in the delivery of this report.
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The Asthma & COPD Medication chart, National Asthma Council of Asutralia
This chart is an essential education resource for health professionals to help with identification and explanation of different treatments.
The updated version includes the latest inhalers available in Australia and specifies the PBS reimbursement status of each medication as at August 2023.
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You are still on time to participate in the survey ‘Study into Pharma’s Impact on the Environment and Society’ from Patient View. We encourage you to participate to make your voice heard. Click to access the survey
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GAAPP Funding Requests
As a member organization you are eligible to apply for funding grants to help to achieve your goals and initiatives.
To learn more about the requirements, please visit: gaapp.org/become-a-member/request-for-project-funding/
The deadline for the next request review is 15 September 2023.
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GAAPP Facebook Community – Join the Conversation!
GAAPP has a private Facebook group for our member organizations. Join the group today to connect to other organizations to increase collaboration! Scan the QR code to view the group and request to join, or click here!
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Asthma Chile
Chile
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United States of America
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We proudly represent 108 organizations in 52 countries from all continents
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We advocate for 19 Pathologies across all allergy, atopic, and airways diseases
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More than 20 papers published and supported more than 30 multi-stakeholder projects
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